Charlie Gard case (English Wikipedia)

Truog, RD (2017). "The United Kingdom Sets Limits on Experimental Treatments: The Case of Charlie Gard". JAMA. 318 (11): 1001–1002. doi:10.1001/jama.2017.10410. PMID 28727879.
Wilkinson, D (2017). "Beyond resources: denying parental requests for futile treatment". Lancet. 389 (10082): 1866–1867. doi:10.1016/S0140-6736(17)31205-9. PMID 28478971. S2CID 37168014.
Dyer, C (2017). "Law, ethics, and emotion: the Charlie Gard case". BMJ. 358: j3152. doi:10.1136/bmj.j3152. PMID 28676496. S2CID 13289483.
El-Hattab, Ayman W.; Scaglia, Fernando (2013). "Mitochondrial DNA Depletion Syndromes: Review and Updates of Genetic Basis, Manifestations, and Therapeutic Options". Neurotherapeutics. 10 (2): 186–198. doi:10.1007/s13311-013-0177-6. ISSN 1933-7213. PMC 3625391. PMID 23385875.
Viscomi, Carlo; Bottani, Emanuela; Zeviani, Massimo (2015). "Emerging concepts in the therapy of mitochondrial disease". Biochimica et Biophysica Acta (BBA) - Bioenergetics. 1847 (6): 544–557. doi:10.1016/j.bbabio.2015.03.001. PMID 25766847.
Dyer, Clare (4 July 2017). "Feature. Law, ethics, and emotion: the Charlie Gard case". BMJ. 358: j3152. doi:10.1136/bmj.j3152. PMID 28676496. S2CID 13289483.
Bridgeman, Jo (2021). "'Our legal responsibility…to intervene on behalf of the child': Recognising public responsibilities for the medical treatment of children". Medical Law International. 21 (1): 19–41. doi:10.1177/0968533221993507. ISSN 0968-5332.
Larcher, V; Craig, F; Bhogal, K; Wilkinson, D; Brierley, J; Royal College of Paediatrics and Child, Health. (May 2015). "Making decisions to limit treatment in life-limiting and life-threatening conditions in children: a framework for practice". Archives of Disease in Childhood. 100 (Suppl 2): s3-23. doi:10.1136/archdischild-2014-306666. PMID 25802250.
Caplan, AL; Ray, A (8 March 2016). "The Ethical Challenges of Compassionate Use". JAMA. 315 (10): 979–80. doi:10.1001/jama.2016.0416. PMID 26868205.
Clark, Peter A. (2007). "Medical Futility: Legal and Ethical Analysis". The Virtual Mentor. 9 (5): 375–83. doi:10.1001/virtualmentor.2007.9.5.msoc1-0705. PMID 23217998.
D Morgan, RG Lee (1997). "In the Name of the Father? Ex parte Blood: Dealing with Novelty and Anomaly". Modern Law Review. 60 (6): 840–856. doi:10.1111/1468-2230.00119. Retrieved 21 December 2020.
Benbow, David (2019). "An Analysis of Charlie's Law and Alfie's Law". Medical Law Review. 28 (2): 223–246. doi:10.1093/medlaw/fwz017. PMID 31377814.
Savulescu, Julian (2015). "Bioethics: why philosophy is essential for progress". Journal of Medical Ethics. 41 (1): 28–33. doi:10.1136/medethics-2014-102284. PMID 25516929. S2CID 20784325. Retrieved 12 September 2017.

familylawweek.co.uk

"Wardship".

foxnews.com

"5 things to know about experimental treatment". Fox News. 17 July 2017.

gosh.nhs.uk

"GOSH Position Statement 24 July".
"Latest statement on GOSH patient Charlie Gard". Great Ormond Street Hospital. 24 July 2017.
"Latest statement on Charlie Gard". Retrieved 10 August 2017.
"GOSH press release 27 July".
"Statement from Mary MacLeod, Chairman of Great Ormond Street Hospital" (Press release). Great Ormond Street Hospital. 22 July 2017. Retrieved 22 July 2017.

govtrack.us

"S.Res. 99 (112th): A resolution..." Retrieved 16 September 2017.

house.gov

wenstrup.house.gov

"Congressmen to introduce Bill". 7 July 2017.

ibtimes.co.uk

Kishore, Divya (3 July 2017). "Pope Francis says wishes of brain-damaged baby Charlie Gard's parents should be respected". International Business Times UK. Retrieved 1 August 2017.

independent.co.uk

"Would Charlie Gard really have survived if he'd been treated sooner? Here's the sad truth". The Independent. 26 July 2017. Retrieved 30 July 2017. Dr Hirano had never physically assessed Charlie nor had he had sight of his medical records and investigations, including the second opinions of doctors from outside GOSH.
Revesz, Rachael (9 July 2017). "Charlie Gard: US congressmen want to make sick baby an American citizen so he can receive treatment abroad". The Independent. Retrieved 10 July 2017.
Forster, Katie (10 July 2017). "Charlie Gard: Parents to present fresh evidence for sick baby to receive experimental treatment". The Independent. Retrieved 10 July 2017.
Jayaram, Ravi (27 July 2017). "Would Charlie Gard really have survived if he'd been treated sooner?". Independent.
"Charlie Gard: Professor who offered to help baby has 'financial interest' in drug he was treating him with, says GOSH". The Independent. 25 July 2017. Retrieved 30 July 2017.

itv.com

"Judge to start analysing evidence as appeal for baby Charlie Gard hits £1.2 million". ITV News. 2 April 2017. Retrieved 13 July 2017.

journalonline.co.uk

"Supreme Courts: the US and UK compared". The Journal of the Law Society of Scotland. 16 February 2015.

judiciary.gov.uk

Mr Justice Francis (24 July 2017). "Approved Judgement" (PDF).
"Great Ormond Street Hospital -v- Yates and Gard judgment 24 July 2017" (PDF).
"Press Release Judgement 11 April: Great Ormond Street Hospital for Children -v- Gard" (PDF).
"Press summary: Great Ormond Street Hospital for Children -v- Gard" (PDF).
"Last Directions in High Court" (PDF). Retrieved 25 August 2017.

justice.gov.uk

"Practice Direction 12D (updated: Friday, 16 June 2017)".

lawgazette.co.uk

Keegan, Leslie (4 October 2011). "Withdrawal of medical treatment". The Law Gazette. Retrieved 31 July 2017.
Fouzder, Monidipa (11 April 2017). "Baby's parents 'struggling to understand' life support ruling". The Law Gazette. Retrieved 10 July 2017.

legislation.gov.uk

"Children Act 1989".

metro.co.uk

Hartley-Parkinson, Richard (21 March 2017). "Fund for sick baby reaches £400,000 – but another £800,000 is needed". Metro. Retrieved 30 July 2017.

mylondon.news

"Charlie Gard: Huge £27,000 anonymous donation to fund treatment made despite judge's life support decision". MyLondon News. 27 April 2017. Retrieved 10 July 2017.

nih.gov

pubmed.ncbi.nlm.nih.gov

Truog, RD (2017). "The United Kingdom Sets Limits on Experimental Treatments: The Case of Charlie Gard". JAMA. 318 (11): 1001–1002. doi:10.1001/jama.2017.10410. PMID 28727879.
Wilkinson, D (2017). "Beyond resources: denying parental requests for futile treatment". Lancet. 389 (10082): 1866–1867. doi:10.1016/S0140-6736(17)31205-9. PMID 28478971. S2CID 37168014.
Dyer, C (2017). "Law, ethics, and emotion: the Charlie Gard case". BMJ. 358: j3152. doi:10.1136/bmj.j3152. PMID 28676496. S2CID 13289483.
El-Hattab, Ayman W.; Scaglia, Fernando (2013). "Mitochondrial DNA Depletion Syndromes: Review and Updates of Genetic Basis, Manifestations, and Therapeutic Options". Neurotherapeutics. 10 (2): 186–198. doi:10.1007/s13311-013-0177-6. ISSN 1933-7213. PMC 3625391. PMID 23385875.
Viscomi, Carlo; Bottani, Emanuela; Zeviani, Massimo (2015). "Emerging concepts in the therapy of mitochondrial disease". Biochimica et Biophysica Acta (BBA) - Bioenergetics. 1847 (6): 544–557. doi:10.1016/j.bbabio.2015.03.001. PMID 25766847.
Dyer, Clare (4 July 2017). "Feature. Law, ethics, and emotion: the Charlie Gard case". BMJ. 358: j3152. doi:10.1136/bmj.j3152. PMID 28676496. S2CID 13289483.
Larcher, V; Craig, F; Bhogal, K; Wilkinson, D; Brierley, J; Royal College of Paediatrics and Child, Health. (May 2015). "Making decisions to limit treatment in life-limiting and life-threatening conditions in children: a framework for practice". Archives of Disease in Childhood. 100 (Suppl 2): s3-23. doi:10.1136/archdischild-2014-306666. PMID 25802250.
Caplan, AL; Ray, A (8 March 2016). "The Ethical Challenges of Compassionate Use". JAMA. 315 (10): 979–80. doi:10.1001/jama.2016.0416. PMID 26868205.
Clark, Peter A. (2007). "Medical Futility: Legal and Ethical Analysis". The Virtual Mentor. 9 (5): 375–83. doi:10.1001/virtualmentor.2007.9.5.msoc1-0705. PMID 23217998.
Benbow, David (2019). "An Analysis of Charlie's Law and Alfie's Law". Medical Law Review. 28 (2): 223–246. doi:10.1093/medlaw/fwz017. PMID 31377814.
Savulescu, Julian (2015). "Bioethics: why philosophy is essential for progress". Journal of Medical Ethics. 41 (1): 28–33. doi:10.1136/medethics-2014-102284. PMID 25516929. S2CID 20784325. Retrieved 12 September 2017.

ncbi.nlm.nih.gov

El-Hattab, Ayman W.; Scaglia, Fernando (2013). "Mitochondrial DNA Depletion Syndromes: Review and Updates of Genetic Basis, Manifestations, and Therapeutic Options". Neurotherapeutics. 10 (2): 186–198. doi:10.1007/s13311-013-0177-6. ISSN 1933-7213. PMC 3625391. PMID 23385875.

ghr.nlm.nih.gov

"RRM2B-related mitochondrial DNA depletion syndrome, encephalomyopathic form with renal tubulopathy". United States National Library of Medicine. Retrieved 12 July 2017.

nuffieldbioethics.org

Bhatia, Neera. "Disagreements in the care of critically ill children: emerging issues in a changing landscape". Nuffield Council on Bioethics. Retrieved 21 December 2020.

nytimes.com

BILEFSKY, DAN (28 July 2017). "Charlie Gard Dies, Leaving a Legacy of Thorny Ethics Questions". The New York Times. Retrieved 14 September 2017.
Bilefsky, Dan; Chan, Sewell (4 July 2017). "For Parents of U.K. Infant, Trump's Tweet Is Latest Twist in an Agonizing Journey". The New York Times. Retrieved 1 August 2017.
Bilefsky, Dan (7 August 2017). "For Parents of Children Like Charlie Gard, Learning to 'Redefine Hope'". The New York Times. Retrieved 8 August 2017.

ox.ac.uk

blog.practicalethics.ox.ac.uk

Wilkinson, Dominic (22 May 2017). "Agreement and disagreement about experimental treatment. The Charlie Gard Appeal". Retrieved 9 September 2017.
Wilkinson, Dominic (6 July 2017). "The sad case of Charlie Gard and the rights and wrongs of experimental treatment 6 July".
Savulescu, Julian (5 July 2017). "he Moral of the Case of Charlie Gard: Give Dying Patients Experimental Treatment ... Early (July 5)". Retrieved 9 September 2017.
Savulescu, Julian (26 April 2017). "The Fiction of an Interest in Death? Justice for Charlie Gard". Practical Ethics. University of Oxford. Retrieved 10 December 2017.
Wilkinson, Dominic (26 April 2017). "Debate Response: Charlie Gard, Interests and Justice – an alternative view". Practical Ethics. University of Oxford. Retrieved 10 December 2017.
Savulescu, Julian (5 July 2017). "The Moral of the Case of Charlie Gard: Give Dying Patients Experimental Treatment ... Early".
Wilkinson, Dominic (6 July 2017). "The sad case of Charlie Gard and the rights *and wrongs* of experimental treatment".

people.com

Quinn, Dave (14 July 2017). "Michio Hirano: What to Know About the Doctor Treating Terminally Ill Baby Charlie Gard". People. Retrieved 1 August 2017.

radiovaticana.va

en.radiovaticana.va

Paglia (Archbishop), Vincenzo. "Vatican's Academy for Life issues statement on baby Charlie Gard".

reuters.com

Garrison, Cassandra (27 July 2017). "#CharlieGard: social media turns family tragedy into global war of words". Reuters. Retrieved 23 July 2017.

safeguardingchildren.co.uk

"Child Protection Procedure". Retrieved 11 September 2017.

semanticscholar.org

api.semanticscholar.org

Wilkinson, D (2017). "Beyond resources: denying parental requests for futile treatment". Lancet. 389 (10082): 1866–1867. doi:10.1016/S0140-6736(17)31205-9. PMID 28478971. S2CID 37168014.
Dyer, C (2017). "Law, ethics, and emotion: the Charlie Gard case". BMJ. 358: j3152. doi:10.1136/bmj.j3152. PMID 28676496. S2CID 13289483.
Dyer, Clare (4 July 2017). "Feature. Law, ethics, and emotion: the Charlie Gard case". BMJ. 358: j3152. doi:10.1136/bmj.j3152. PMID 28676496. S2CID 13289483.
Savulescu, Julian (2015). "Bioethics: why philosophy is essential for progress". Journal of Medical Ethics. 41 (1): 28–33. doi:10.1136/medethics-2014-102284. PMID 25516929. S2CID 20784325. Retrieved 12 September 2017.

sky.com

news.sky.com

Heffer, Greg. "Timeline: Parents' battle to save Charlie Gard". Sky News.

spiked-online.com

Holbrook, Jon. "Charlie Gard's case should never have gone to court 31 July". Spiked. Retrieved 8 September 2017.

statnews.com

Begley, Sharon (6 July 2017). "New York hospital offers to admit Charlie Gard, baby at center of life-and-death legal fight". STAT.

stlouisreview.com

Doerflinger, Richard (20 July 2017). "A More Human Society – Who speaks for Charlie Gard?". St. Louis Review. Roman Catholic Archdiocese of St. Louis. Retrieved 16 September 2017.

supremecourt.uk

telegraph.co.uk

Mendick, Robert (28 July 2017). "Charlie Gard: The tragic case of a too short life". The Telegraph.
Boyle, Danny (30 June 2017). "Charlie Gard's parents endure 'worst day of our lives' as doctors to switch off baby's life support within hours". The Daily Telegraph. Retrieved 7 July 2017.
Mendick, Robert (11 July 2017). "Hospitals refuse to take Charlie Gard as relations between his parents and Great Ormond Street plummet". The Telegraph. Retrieved 3 August 2017.
"Pope considers 'giving Charlie Gard a Vatican passport' to overcome rulings preventing treatment in Italy". The Daily Telegraph. 7 July 2017. Retrieved 10 July 2017.
Dixon, Hayley (23 July 2017). "Charlie Gard's parents 'extremely upset' by public backlash". The Telegraph.
"Charlie Gard's parents angry that baby's lawyer is head of charity that backs assisted dying". The Telegraph. 16 July 2017.
Mendick, Robert (10 July 2017). "Charlie Gard court case: Parents have just 48 hours to prove untested, experimental technique works". The Telegraph. Retrieved 25 August 2017.
"US specialist to examine Charlie Gard next week, judge told". The Daily Telegraph. 14 July 2017. Retrieved 16 July 2017.
Mendick, Robert; Boyle, Danny (25 July 2017). "Charlie Gard's parents accuse hospital of blocking 'final wish' for baby to be allowed home to die". The Telegraph.

theguardian.com

Boseley, Sarah (25 July 2017). "US doctor's intervention in Charlie Gard case 'raises ethical questions'". The Guardian.
Siddique, Haroon (30 June 2017). "Charlie Gard's parents given more time before life support is turned off". The Guardian.
Glenza, Jessica (26 July 2017). "How Charlie Gard captured Trump's attention and animated pro-life groups". The Guardian. ISSN 0261-3077. Retrieved 30 July 2017.
Boseley, Sarah (7 July 2017). "Charlie Gard hospital applies to high court for fresh hearing". The Guardian. ISSN 0261-3077. Retrieved 10 August 2017.
Grierson, Jamie; Addley, Esther; Bowcott, Owen (12 April 2017). "Charlie Gard's parents have three weeks to challenge life support ruling". The Guardian. Retrieved 30 July 2017.
Davies, Caroline (11 April 2017). "Parents fighting to keep baby alive lose high court battle". The Guardian.
Bowcott, Owen (8 June 2017). "Charlie Gard's parents make emergency appeal to European judges". The Guardian. Retrieved 19 July 2017.
Bowcott, Owen (27 June 2017). "Charlie Gard: European court rejects plea to intervene in life-support fight". The Guardian. Retrieved 19 July 2017.
Siddique, Haroon (24 July 2017). "Charlie Gard: parents end legal fight over critically ill baby". The Guardian.
Taylor, Matthew (23 July 2017). "Charlie Gard's parents condemn abuse levelled at hospital staff". Guardian. Retrieved 26 August 2017.
"Connie Yates Statement 24 July". The Guardian. 24 July 2017.
"Charlie Gard has died, his parents say". The Guardian. 28 July 2017.

thehastingscenter.org

Dauber, Michael S. (26 July 2017). "Charlie Gard, Compassionate Use, and Single-Payer Health Care – The Hastings Center". The Hastings Center.

thetimes.co.uk

Mostrous, Alexi (29 July 2017). "Charlie Gard: publicity that was not always in the family's interests". The Times.

ukcen.net

"UKCEN Ethical Issues – consent".

usnews.com

Winfield, Nicole. "Pope Reverses Vatican Stand on British Sick Baby Case". US News. Retrieved 13 September 2017.

washingtonpost.com

Bever, Lindsey (28 July 2017). "'Our beautiful little boy has gone': Parents of Charlie Gard say he has died". The Washington Post. Retrieved 1 August 2017.
Gaffney, Adam (24 July 2017). "Charlie Gard's case is tragic. But it's not a warning about public health care". Washington Post. Retrieved 3 September 2017.

washingtontimes.com

Chumley, Cheryl K. "Charlie Gard makes Trump case for speedy Obamacare repeal". The Washington Times 3 July 2017.

wbur.org

McLean, Paul C. (25 July 2017). "Medical Ethics: In The Charlie Gard Case, Listen To The Nurses". www.wbur.org.

wiley.com

onlinelibrary.wiley.com

D Morgan, RG Lee (1997). "In the Name of the Father? Ex parte Blood: Dealing with Novelty and Anomaly". Modern Law Review. 60 (6): 840–856. doi:10.1111/1468-2230.00119. Retrieved 21 December 2020.

worldcat.org

search.worldcat.org

El-Hattab, Ayman W.; Scaglia, Fernando (2013). "Mitochondrial DNA Depletion Syndromes: Review and Updates of Genetic Basis, Manifestations, and Therapeutic Options". Neurotherapeutics. 10 (2): 186–198. doi:10.1007/s13311-013-0177-6. ISSN 1933-7213. PMC 3625391. PMID 23385875.
Glenza, Jessica (26 July 2017). "How Charlie Gard captured Trump's attention and animated pro-life groups". The Guardian. ISSN 0261-3077. Retrieved 30 July 2017.
Boseley, Sarah (7 July 2017). "Charlie Gard hospital applies to high court for fresh hearing". The Guardian. ISSN 0261-3077. Retrieved 10 August 2017.
Bridgeman, Jo (2021). "'Our legal responsibility…to intervene on behalf of the child': Recognising public responsibilities for the medical treatment of children". Medical Law International. 21 (1): 19–41. doi:10.1177/0968533221993507. ISSN 0968-5332.

zenit.org

Bourdin, Anita (3 July 2017). "Rome's Bambino Gesù Hospital Is Ready to Receive Charlie Gard – ZENIT – English". Zenit News Agency.