Informed consent (English Wikipedia)

Analysis of information sources in references of the Wikipedia article "Informed consent" in English language version.

refsWebsite

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32nih.gov

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27doi.org

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8semanticscholar.org

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aappublications.org

pediatrics.aappublications.org

Committee on Bioethics (1995). "Informed consent, parental permission, and assent in pediatric practice" (PDF). Pediatrics. 95 (2): 314–7. doi:10.1542/peds.95.2.314. PMID 7838658. S2CID 22221051.

aicgs.org

Dieper, Susanne (23 February 2012). "The Legal Framework of Abortions in Germany". American Institute for Contemporary German Studies. Johns Hopkins University. Retrieved 3 April 2015.

allclinicaltrials.com

"Questions to Ask Before Participating in Clinical Trials". AllClinicalTrials.com. Curify, Inc. Retrieved 2025-01-27.

ama-assn.org

journalofethics.ama-assn.org

Murray B (Jul 2012). "Informed Consent: What Must a Physician Disclose to a Patient?". AMA Journal of Ethics. 14 (7): 563–566. doi:10.1001/virtualmentor.2012.14.7.hlaw1-1207. PMID 23351294. Retrieved 13 Sep 2020.

apa.org

2. American Psychological Association. (2002). "2010 Amendments to the American Psychological Association ethical principles of psychologists and code of conduct". Retrieved 30 April 2012.{{cite web}}: CS1 maint: numeric names: authors list (link)

archive.org

Faden, R. R.; Beauchamp, T. L. (1986). A History and Theory of Informed Consent. New York: Oxford University Press. ISBN 978-0-19-503686-2.
Beauchamp, Tom L.; Childress, James F. (1994). Principles of Biomedical Ethics (Fourth ed.). New York: Oxford University Press. ISBN 978-0-19-508536-5.
Annas, George J.; Glantz, Leonard; Katz, Barbara (1977). Informed Consent to Human Experimentation. Cambridge, Massachusetts: Ballinger Publishing Company. pp. 63–93. ISBN 978-0-88410-147-5.
Faden, Ruth R.; Beauchamp, Tom L.; King, Nancy M.P. (1986). A history and theory of informed consent (Online ed.). New York: Oxford University Press. ISBN 978-0-19-5036862.
Gregory, John (1772). Lectures on the Duties and Qualifications of a Physician.
Babbie, Earl (2010). The practice of social research (12th ed.). Belmont, Calif: Wadsworth Cengage. ISBN 978-0495598411.

books.google.com

Kim, Scott Y. H. (Dec 1, 2009). Evaluation of Capacity to Consent to Treatment and Research. Oxford University Press. p. 18. ISBN 978-0199747078.

campbell.edu

scholarship.law.campbell.edu

Woodruff, William A. "Letting Life Run Its Course: Do-Not-Resuscitate Orders and Withdrawal of Life-Sustaining Treatment". Scholarly Works: 7 – via Scholarly Repository @Campbell University School of Law.

cioms.ch

Council for International Organization of Medical Sciences (CIOMS) and World Health Organization (WHO) Geneva, Switzerland, 2002. "International Ethical Guidelines for Biomedical Research Involving Human Subjects" (PDF). Archived from the original (PDF) on 2010-08-23.{{cite web}}: CS1 maint: multiple names: authors list (link) CS1 maint: numeric names: authors list (link)

credoreference.com

search.credoreference.com

Jenkins, Randi (2018). "Informed Consent". Credo Reference. Retrieved 2025-04-24.

credoreference.com

Baren, Jill. "Informed Consent to Human Experimentation". Springer Publishing Company. Retrieved 26 September 2013.

doi.org

Spatz, E. S., Krumholz, H. M., & Moulton, B. W. (2016). The New Era of Informed Consent: Getting to a Reasonable-Patient Standard Through Shared Decision Making. JAMA : The Journal of the American Medical Association, 315(19), 2063–2064. https://doi.org/10.1001/jama.2016.3070
Murray B (Jul 2012). "Informed Consent: What Must a Physician Disclose to a Patient?". AMA Journal of Ethics. 14 (7): 563–566. doi:10.1001/virtualmentor.2012.14.7.hlaw1-1207. PMID 23351294. Retrieved 13 Sep 2020.
Sturman, E (November 2005). "The capacity to consent to treatment and research: A review of standardized assessment tools". Clinical Psychology Review. 25 (7): 954–974. doi:10.1016/j.cpr.2005.04.010. PMID 15964671.
Committee on Bioethics (1995). "Informed consent, parental permission, and assent in pediatric practice" (PDF). Pediatrics. 95 (2): 314–7. doi:10.1542/peds.95.2.314. PMID 7838658. S2CID 22221051.
Nash, Elizabeth; Bickerstaff, Matthew; Chetwynd, Andrew J.; Hawcutt, Daniel B.; Oni, Louise (September 2023). "The readability of parent information leaflets in paediatric studies". Pediatric Research. 94 (3): 1166–1171. doi:10.1038/s41390-023-02608-z. ISSN 1530-0447. PMC 10444605.
O’Halloran, Cian P.; Agarwal, Abhishek; Hawcutt, Daniel B.; Oni, Louise; Moss, James (2025-02-22). "Readability of paediatric participant information leaflets in research studies". Pediatric Research: 1–6. doi:10.1038/s41390-025-03943-z. ISSN 1530-0447.
McManus, J., J; S. G. Mehta; et al. (2005). "Informed consent and ethical issues in military medical research". Academic Emergency Medicine. 12 (11): 1120–1126. doi:10.1111/j.1553-2712.2005.tb00839.x. PMID 16264083.
Corrigan, Oonagh (November 2003). "Empty ethics: the problem with informed consent". Sociology of Health and Illness. 25 (7): 768–792. doi:10.1046/j.1467-9566.2003.00369.x. ISSN 0141-9889. PMID 19780205.
St John, ER.; Scott, AJ.; Irvine, TE.; Pakzad, F.; Leff, DR.; Layer, GT. (2017). "Completion of hand-written surgical consent forms is frequently suboptimal and could be improved by using electronically generated, procedure-specific forms". The Surgeon. 15 (4): 190–195. doi:10.1016/j.surge.2015.11.004. PMID 26791394.
St John, ER. (2021). "Assessment of the introduction of semi-digital consent into surgical practice". British Journal of Surgery. 108 (4): 342–345. doi:10.1093/bjs/znaa119. PMID 33783479.
Schulz, Alexandra; Bohnet-Joschko, Sabine (2024-08-02). "Enhancing patient informed consent in elective skin cancer surgeries: a comparative study of traditional and digital approaches in a German public hospital". BMC Health Services Research. 24 (1): 879. doi:10.1186/s12913-024-11225-3. ISSN 1472-6963. PMC 11295654. PMID 39095856.
Bernat, James L.; McQuillen, Michael P. (2021). "On Shared Decision-making and Informed Consent". Neurology. Clinical Practice. 11 (2): 93–94. doi:10.1212/CPJ.0000000000000823. ISSN 2163-0402. PMC 8032407. PMID 33842060.
Chalil Madathil, K.; Koikkara, R.; Gramopadhye, A. K.; Greenstein, J. S. (2011). "An Empirical Study of the Usability of Consenting Systems: IPad, Touchscreen and Paper-based Systems". Proceedings of the Human Factors and Ergonomics Society Annual Meeting. 55: 813–817. doi:10.1177/1071181311551168. S2CID 62362166.
Chalil Madathil, K.; Koikkara, R.; Obeid, J.; Greenstein, J. S.; Sanderson, I. C.; Fryar, K.; Moskowitz, J.; Gramopadhye, A. K. (2013). "An investigation of the efficacy of electronic consenting interfaces of research permissions management system in a hospital setting". International Journal of Medical Informatics. 82 (9): 854–863. doi:10.1016/j.ijmedinf.2013.04.008. PMC 3779682. PMID 23757370.
Sanderson, I. C.; Obeid, J. S.; Madathil, K. C.; Gerken, K.; Fryar, K.; Rugg, D.; Alstad, C. E.; Alexander, R.; Brady, K. T.; Gramopadhye, A. K.; Moskowitz, J. (2013). "Managing clinical research permissions electronically: A novel approach to enhancing recruitment and managing consents". Clinical Trials. 10 (4): 604–611. doi:10.1177/1740774513491338. PMC 4213063. PMID 23785065.
Levitt, S. D.; List, J. A. (2007). "What Do Laboratory Experiments Measuring Social Preferences Reveal about the Real World?" (PDF). Journal of Economic Perspectives. 21 (2): 153–174. doi:10.1257/jep.21.2.153. JSTOR 30033722. S2CID 26940779.
List, J. A.; List, J. A. (2008). "Informed Consent in Social Science". Science. 322 (5902): 672. CiteSeerX 10.1.1.418.1731. doi:10.1126/science.322.5902.672a. PMID 18974330. S2CID 153720217.
Levitt, S. D.; List, J. A. (2009). "Field experiments in economics: The past, the present, and the future" (PDF). European Economic Review. 53 (1): 1–18. doi:10.1016/j.euroecorev.2008.12.001. S2CID 2977019.
Kramer, Adam; Guillory, Jaime; Jeffrey, Hancock (2014). "Experimental evidence of massive-scale emotional contagion through social networks". PNAS. 111 (24): 8788–90. Bibcode:2014PNAS..111.8788K. doi:10.1073/pnas.1320040111. PMC 4066473. PMID 24889601.
Selek, Salih (1 October 2010). "A written consent five centuries ago". Journal of Medical Ethics. 36 (10): 639. doi:10.1136/jme.2010.037713. PMID 20817814. S2CID 30806638.
Bazzano, Lydia A.; Durant, Jaquail; Brantley, Paula Rhode (2021). "A Modern History of Informed Consent and the Role of Key Information". Ochsner Journal. 21 (1): 81–85. doi:10.31486/toj.19.0105. ISSN 1524-5012. PMC 7993430. PMID 33828429.
Cutter, Laura (2016). "Walter Reed, Yellow Fever, and Informed Consent". Military Medicine. 181 (1): 90–91. doi:10.7205/milmed-d-15-00430. PMID 26741482.
Beskow, Laura M. (2016-08-31). "Lessons from HeLa Cells: The Ethics and Policy of Biospecimens". Annual Review of Genomics and Human Genetics. 17: 395–417. doi:10.1146/annurev-genom-083115-022536. ISSN 1545-293X. PMC 5072843. PMID 26979405.
Baumrind, D. (1964). "Some thoughts on ethics of research: After reading Milgram's "Behavioral Study of Obedience."". American Psychologist. 19 (6): 421–423. doi:10.1037/h0040128.
Deane-Drummond, Celia E. (2020-04-02). "Principles of Green Bioethics". The New Bioethics. 26 (2): 190–194. doi:10.1080/20502877.2020.1767915. ISSN 2050-2877. S2CID 221052407.
Richie, Cristina; Kesselheim, Aaron S.; Jones, David S. (2023-01-21). "Climate change and the prescription pad". The Lancet. 401 (10372): 178–179. doi:10.1016/S0140-6736(22)02545-4. ISSN 0140-6736. PMID 36566765. S2CID 254990042.
Hurley, Meghan E.; Lang, Benjamin H.; Kostick-Quenet, Kristin Marie; Smith, Jared N.; Blumenthal-Barby, Jennifer (17 Sep 2024). "Patient Consent and The Right to Notice and Explanation of AI Systems Used in Health Care". The American Journal of Bioethics. 25 (3): 102–114. doi:10.1080/15265161.2024.2399828. ISSN 1536-0075. PMC 12143229. PMID 39288291.

elsevier.com

linkinghub.elsevier.com

Sturman, E (November 2005). "The capacity to consent to treatment and research: A review of standardized assessment tools". Clinical Psychology Review. 25 (7): 954–974. doi:10.1016/j.cpr.2005.04.010. PMID 15964671.

freedom-to-tinker.com

Salganik, Matt (7 July 2014). "After the Facebook emotional contagion experiment: A proposal for a positive path forward". Freedom to Tinker. Retrieved April 26, 2015.

github.com

"HSSC/RPMS · GitHub". github.com. 31 March 2014. Retrieved 14 September 2014.

gov.uk

Government response to consultation on legislative proposals for clinical trials

govinfo.gov

"PUBLIC LAW 114–255—DEC. 13, 2016 130 STAT. 1033" (PDF). www.govinfo.gov.

guttmacher.org

Gold, Rachel and Nash, Elizabeth.State Abortion Counseling Policies and the Fundamental Principles of Informed Consent, Guttmacher Policy Review, Fall 2007, Volume 10, Number 4.
Richardson, Chinue and Nash, Elizabeth. "Misinformed Consent: The Medical Accuracy of State-Developed Abortion Counseling Materials", Guttmacher Policy Review Fall 2006, Volume 9, Number 4.

harvard.edu

ui.adsabs.harvard.edu

Kramer, Adam; Guillory, Jaime; Jeffrey, Hancock (2014). "Experimental evidence of massive-scale emotional contagion through social networks". PNAS. 111 (24): 8788–90. Bibcode:2014PNAS..111.8788K. doi:10.1073/pnas.1320040111. PMC 4066473. PMID 24889601.

healthsciencessc.org

"Health Sciences South Carolina". healthsciencessc.org. Archived from the original on 11 October 2014. Retrieved 14 September 2014.
"Health Sciences South Carolina". healthsciencessc.org. Archived from the original on 11 October 2014. Retrieved 14 September 2014.

ich.org

"Guideline For Good Clinical Practice" (PDF). Retrieved 2018-09-24.

informedconsentmatters.co.uk

"Montgomery Ruling". Informed Consent Matters. Retrieved 7 December 2023.

jstor.org

Levitt, S. D.; List, J. A. (2007). "What Do Laboratory Experiments Measuring Social Preferences Reveal about the Real World?" (PDF). Journal of Economic Perspectives. 21 (2): 153–174. doi:10.1257/jep.21.2.153. JSTOR 30033722. S2CID 26940779.

latimes.com

Terhune, Chad (2014, April 25). More scrutiny for UCLA's School of Medicine. Los Angeles Times. Retrieved from http://www.latimes.com/business/la-fi-ucla-outside-money-20140426-story.html#ixzz30BvcCJIV
"UC Irvine Fertility Scandal Isn't Over". Los Angeles Times. 2006-01-20. Retrieved 2023-06-14.

medium.com

Grimmelmann, James (2 October 2014). "Illegal, Immoral, and Mood-Altering How Facebook and OkCupid Broke the Law When They Experimented on Users". Medium. Retrieved April 26, 2015.

medscape.com

Too Much Information: Informed Consent in Cultural Context. By Joseph J. Fins and Pablo Rodriguez del Pozo. Medscape 07/18/2011

nature.com

Nash, Elizabeth; Bickerstaff, Matthew; Chetwynd, Andrew J.; Hawcutt, Daniel B.; Oni, Louise (September 2023). "The readability of parent information leaflets in paediatric studies". Pediatric Research. 94 (3): 1166–1171. doi:10.1038/s41390-023-02608-z. ISSN 1530-0447. PMC 10444605.
O’Halloran, Cian P.; Agarwal, Abhishek; Hawcutt, Daniel B.; Oni, Louise; Moss, James (2025-02-22). "Readability of paediatric participant information leaflets in research studies". Pediatric Research: 1–6. doi:10.1038/s41390-025-03943-z. ISSN 1530-0447.

nih.gov

pubmed.ncbi.nlm.nih.gov

Shah, Parth; Thornton, Imani; Turrin, Danielle; Hipskind, John E. (2022). "Informed Consent". StatPearls. StatPearls Publishing. PMID 28613577. Retrieved 12 September 2022.
Murray B (Jul 2012). "Informed Consent: What Must a Physician Disclose to a Patient?". AMA Journal of Ethics. 14 (7): 563–566. doi:10.1001/virtualmentor.2012.14.7.hlaw1-1207. PMID 23351294. Retrieved 13 Sep 2020.
Sturman, E (November 2005). "The capacity to consent to treatment and research: A review of standardized assessment tools". Clinical Psychology Review. 25 (7): 954–974. doi:10.1016/j.cpr.2005.04.010. PMID 15964671.
Committee on Bioethics (1995). "Informed consent, parental permission, and assent in pediatric practice" (PDF). Pediatrics. 95 (2): 314–7. doi:10.1542/peds.95.2.314. PMID 7838658. S2CID 22221051.
McManus, J., J; S. G. Mehta; et al. (2005). "Informed consent and ethical issues in military medical research". Academic Emergency Medicine. 12 (11): 1120–1126. doi:10.1111/j.1553-2712.2005.tb00839.x. PMID 16264083.
Corrigan, Oonagh (November 2003). "Empty ethics: the problem with informed consent". Sociology of Health and Illness. 25 (7): 768–792. doi:10.1046/j.1467-9566.2003.00369.x. ISSN 0141-9889. PMID 19780205.
St John, ER.; Scott, AJ.; Irvine, TE.; Pakzad, F.; Leff, DR.; Layer, GT. (2017). "Completion of hand-written surgical consent forms is frequently suboptimal and could be improved by using electronically generated, procedure-specific forms". The Surgeon. 15 (4): 190–195. doi:10.1016/j.surge.2015.11.004. PMID 26791394.
St John, ER. (2021). "Assessment of the introduction of semi-digital consent into surgical practice". British Journal of Surgery. 108 (4): 342–345. doi:10.1093/bjs/znaa119. PMID 33783479.
Schulz, Alexandra; Bohnet-Joschko, Sabine (2024-08-02). "Enhancing patient informed consent in elective skin cancer surgeries: a comparative study of traditional and digital approaches in a German public hospital". BMC Health Services Research. 24 (1): 879. doi:10.1186/s12913-024-11225-3. ISSN 1472-6963. PMC 11295654. PMID 39095856.
Bernat, James L.; McQuillen, Michael P. (2021). "On Shared Decision-making and Informed Consent". Neurology. Clinical Practice. 11 (2): 93–94. doi:10.1212/CPJ.0000000000000823. ISSN 2163-0402. PMC 8032407. PMID 33842060.
Chalil Madathil, K.; Koikkara, R.; Obeid, J.; Greenstein, J. S.; Sanderson, I. C.; Fryar, K.; Moskowitz, J.; Gramopadhye, A. K. (2013). "An investigation of the efficacy of electronic consenting interfaces of research permissions management system in a hospital setting". International Journal of Medical Informatics. 82 (9): 854–863. doi:10.1016/j.ijmedinf.2013.04.008. PMC 3779682. PMID 23757370.
Sanderson, I. C.; Obeid, J. S.; Madathil, K. C.; Gerken, K.; Fryar, K.; Rugg, D.; Alstad, C. E.; Alexander, R.; Brady, K. T.; Gramopadhye, A. K.; Moskowitz, J. (2013). "Managing clinical research permissions electronically: A novel approach to enhancing recruitment and managing consents". Clinical Trials. 10 (4): 604–611. doi:10.1177/1740774513491338. PMC 4213063. PMID 23785065.
List, J. A.; List, J. A. (2008). "Informed Consent in Social Science". Science. 322 (5902): 672. CiteSeerX 10.1.1.418.1731. doi:10.1126/science.322.5902.672a. PMID 18974330. S2CID 153720217.
Kramer, Adam; Guillory, Jaime; Jeffrey, Hancock (2014). "Experimental evidence of massive-scale emotional contagion through social networks". PNAS. 111 (24): 8788–90. Bibcode:2014PNAS..111.8788K. doi:10.1073/pnas.1320040111. PMC 4066473. PMID 24889601.
Selek, Salih (1 October 2010). "A written consent five centuries ago". Journal of Medical Ethics. 36 (10): 639. doi:10.1136/jme.2010.037713. PMID 20817814. S2CID 30806638.
Bazzano, Lydia A.; Durant, Jaquail; Brantley, Paula Rhode (2021). "A Modern History of Informed Consent and the Role of Key Information". Ochsner Journal. 21 (1): 81–85. doi:10.31486/toj.19.0105. ISSN 1524-5012. PMC 7993430. PMID 33828429.
Cutter, Laura (2016). "Walter Reed, Yellow Fever, and Informed Consent". Military Medicine. 181 (1): 90–91. doi:10.7205/milmed-d-15-00430. PMID 26741482.
Beskow, Laura M. (2016-08-31). "Lessons from HeLa Cells: The Ethics and Policy of Biospecimens". Annual Review of Genomics and Human Genetics. 17: 395–417. doi:10.1146/annurev-genom-083115-022536. ISSN 1545-293X. PMC 5072843. PMID 26979405.
Richie, Cristina; Kesselheim, Aaron S.; Jones, David S. (2023-01-21). "Climate change and the prescription pad". The Lancet. 401 (10372): 178–179. doi:10.1016/S0140-6736(22)02545-4. ISSN 0140-6736. PMID 36566765. S2CID 254990042.
Hurley, Meghan E.; Lang, Benjamin H.; Kostick-Quenet, Kristin Marie; Smith, Jared N.; Blumenthal-Barby, Jennifer (17 Sep 2024). "Patient Consent and The Right to Notice and Explanation of AI Systems Used in Health Care". The American Journal of Bioethics. 25 (3): 102–114. doi:10.1080/15265161.2024.2399828. ISSN 1536-0075. PMC 12143229. PMID 39288291.

ncbi.nlm.nih.gov

Shah, Parth; Thornton, Imani; Turrin, Danielle; Hipskind, John E. (2022). "Informed Consent". StatPearls. StatPearls Publishing. PMID 28613577. Retrieved 12 September 2022.
Nash, Elizabeth; Bickerstaff, Matthew; Chetwynd, Andrew J.; Hawcutt, Daniel B.; Oni, Louise (September 2023). "The readability of parent information leaflets in paediatric studies". Pediatric Research. 94 (3): 1166–1171. doi:10.1038/s41390-023-02608-z. ISSN 1530-0447. PMC 10444605.
Schulz, Alexandra; Bohnet-Joschko, Sabine (2024-08-02). "Enhancing patient informed consent in elective skin cancer surgeries: a comparative study of traditional and digital approaches in a German public hospital". BMC Health Services Research. 24 (1): 879. doi:10.1186/s12913-024-11225-3. ISSN 1472-6963. PMC 11295654. PMID 39095856.
Bernat, James L.; McQuillen, Michael P. (2021). "On Shared Decision-making and Informed Consent". Neurology. Clinical Practice. 11 (2): 93–94. doi:10.1212/CPJ.0000000000000823. ISSN 2163-0402. PMC 8032407. PMID 33842060.
Chalil Madathil, K.; Koikkara, R.; Obeid, J.; Greenstein, J. S.; Sanderson, I. C.; Fryar, K.; Moskowitz, J.; Gramopadhye, A. K. (2013). "An investigation of the efficacy of electronic consenting interfaces of research permissions management system in a hospital setting". International Journal of Medical Informatics. 82 (9): 854–863. doi:10.1016/j.ijmedinf.2013.04.008. PMC 3779682. PMID 23757370.
Sanderson, I. C.; Obeid, J. S.; Madathil, K. C.; Gerken, K.; Fryar, K.; Rugg, D.; Alstad, C. E.; Alexander, R.; Brady, K. T.; Gramopadhye, A. K.; Moskowitz, J. (2013). "Managing clinical research permissions electronically: A novel approach to enhancing recruitment and managing consents". Clinical Trials. 10 (4): 604–611. doi:10.1177/1740774513491338. PMC 4213063. PMID 23785065.
Kramer, Adam; Guillory, Jaime; Jeffrey, Hancock (2014). "Experimental evidence of massive-scale emotional contagion through social networks". PNAS. 111 (24): 8788–90. Bibcode:2014PNAS..111.8788K. doi:10.1073/pnas.1320040111. PMC 4066473. PMID 24889601.
Bazzano, Lydia A.; Durant, Jaquail; Brantley, Paula Rhode (2021). "A Modern History of Informed Consent and the Role of Key Information". Ochsner Journal. 21 (1): 81–85. doi:10.31486/toj.19.0105. ISSN 1524-5012. PMC 7993430. PMID 33828429.
Beskow, Laura M. (2016-08-31). "Lessons from HeLa Cells: The Ethics and Policy of Biospecimens". Annual Review of Genomics and Human Genetics. 17: 395–417. doi:10.1146/annurev-genom-083115-022536. ISSN 1545-293X. PMC 5072843. PMID 26979405.
Hurley, Meghan E.; Lang, Benjamin H.; Kostick-Quenet, Kristin Marie; Smith, Jared N.; Blumenthal-Barby, Jennifer (17 Sep 2024). "Patient Consent and The Right to Notice and Explanation of AI Systems Used in Health Care". The American Journal of Bioethics. 25 (3): 102–114. doi:10.1080/15265161.2024.2399828. ISSN 1536-0075. PMC 12143229. PMID 39288291.

pmc.ncbi.nlm.nih.gov

Bazzano, Lydia A.; Durant, Jaquail; Brantley, Paula Rhode (2021). "A Modern History of Informed Consent and the Role of Key Information". Ochsner Journal. 21 (1): 81–85. doi:10.31486/toj.19.0105. ISSN 1524-5012. PMC 7993430. PMID 33828429.
Beskow, Laura M. (2016-08-31). "Lessons from HeLa Cells: The Ethics and Policy of Biospecimens". Annual Review of Genomics and Human Genetics. 17: 395–417. doi:10.1146/annurev-genom-083115-022536. ISSN 1545-293X. PMC 5072843. PMID 26979405.

npr.org

If you donate DNA, what should scientists give in return? A 'pathbreaking' new model

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