List of patient-reported quality of life surveys (English Wikipedia)

Analysis of information sources in references of the Wikipedia article "List of patient-reported quality of life surveys" in English language version.

refsWebsite

Global rank English rank

147nih.gov

4^th place

130doi.org

2^nd place

52semanticscholar.org

11^th place

8^th place

6galen-research.com

low place

4clinicaltrials.gov

5,225^th place

4,062^nd place

4clinicaltrialsregister.eu

low place

2rand.org

2,921^st place

2,118^th place

2web.archive.org

1^st place

1worldcat.org

5^th place

1handle.net

102^nd place

76^th place

1uzh.ch

3,633^rd place

3,091^st place

1epires-journal.com

low place

1sagepub.com

731^st place

638^th place

1psu.edu

207^th place

136^th place

1proqolid.org

low place

1archive.today

14^th place

1akm.ch

low place

1neurology.org

9,919^th place

low place

1controlled-trials.com

low place

1nice.org.uk

3,258^th place

2,666^th place

akm.ch

registration.akm.ch

van Lokven T, Kempcke R, Ziemssen T, Meergans M (October 20, 2011). "Study design of a non-interventional registry study to establish long-term safety and pharmaco-economic data on fingolimod (Gilenya®) in multiple sclerosis patients (PANGAEA)". 5th Joint triennial congress of the European and Americas Committees for Treatment and Research in Multiple Sclerosis. Amsterdam, the Netherlands. Archived from the original on November 8, 2013. Retrieved October 9, 2013.

archive.today

van Lokven T, Kempcke R, Ziemssen T, Meergans M (October 20, 2011). "Study design of a non-interventional registry study to establish long-term safety and pharmaco-economic data on fingolimod (Gilenya®) in multiple sclerosis patients (PANGAEA)". 5th Joint triennial congress of the European and Americas Committees for Treatment and Research in Multiple Sclerosis. Amsterdam, the Netherlands. Archived from the original on November 8, 2013. Retrieved October 9, 2013.

clinicaltrials.gov

Clinical trial number NCT00428090 for "Rosiglitazone (Extended Release Tablets) As Monotherapy In Subjects With Mild To Moderate Alzheimer's Disease" at ClinicalTrials.gov
Clinical trial number NCT00348309 for "Rosiglitazone (Extended Release Tablets) As Adjunctive Therapy For Subjects With Mild To Moderate Alzheimer's Disease (REFLECT-2)" at ClinicalTrials.gov
Clinical trial number NCT00348140 for "Rosiglitazone (Extended Release Tablets) As Adjunctive Therapy In Subjects With Mild To Moderate Alzheimer's Disease (REFLECT-3)" at ClinicalTrials.gov
Clinical trial number NCT00427362 for "A Canadian Open-Label Study to Evaluate the Safety and Effectiveness of Adalimumab When Added to Inadequate Therapy for the Treatment of Psoriatic Arthritis (PsA) (ACCLAIM)" at ClinicalTrials.gov

clinicaltrialsregister.eu

"Treating painful hand osteoarthritis using low dose oral prednisolone- assessing short-term pain and imaging outcomes". EU Clinical Trials Register. European Medicines Agency. Retrieved 20 November 2013.
"An open label study to assess the effectiveness of oral methotrexate in reducing pain in knee osteoarthritis". EU Clinical Trials Register. European Medicines Agency. Retrieved 20 November 2013.
"HERO:Hydroxychloroquine Effectiveness in Reducing Symptoms of hand OA, a randomised, double-blind, placebo-controlled trial". Eu Clinical Trials Register. European Medicines Council. Retrieved 20 November 2013.
"CAEB071C2201". ClinicalTrialsRegister.eu. EU Clinical Trials Register. Retrieved 13 November 2013.

controlled-trials.com

Fahy, Sarah. "Efficacy of tocilizumab in patients with rheumatoid arthritis". Current Controlled Trials. Springer Science+Business Media. doi:10.1186/ISRCTN21216199. Retrieved 2 October 2013.

doi.org

Levy K, Lanctôt KL, Farber SB, Li A, Herrmann N (March 2012). "Does pharmacological treatment of neuropsychiatric symptoms in Alzheimer's disease relieve caregiver burden?". Drugs & Aging. 29 (3): 167–179. doi:10.2165/11599140-000000000-00000. PMID 22350526. S2CID 207301505.
Spertus JA, Winder JA, Dewhurst TA, Deyo RA, Prodzinski J, McDonell M, Fihn SD (February 1995). "Development and evaluation of the Seattle Angina Questionnaire: a new functional status measure for coronary artery disease". Journal of the American College of Cardiology. 25 (2): 333–41. doi:10.1016/0735-1097(94)00397-9. PMID 7829785.
Jitta DJ, DeJongste MJ, Kliphuis CM, Staal MJ (January 2011). "Multimorbidity, the predominant predictor of quality-of-life, following successful spinal cord stimulation for angina pectoris". Neuromodulation. 14 (1): 13–8, discussion 18–9. doi:10.1111/j.1525-1403.2010.00321.x. PMID 21992156. S2CID 35519046.
Villano A, Di Franco A, Nerla R, Sestito A, Tarzia P, Lamendola P, et al. (July 2013). "Effects of ivabradine and ranolazine in patients with microvascular angina pectoris". The American Journal of Cardiology. 112 (1): 8–13. doi:10.1016/j.amjcard.2013.02.045. PMID 23558043.
Andréll P, Ekre O, Grip L, Währborg P, Albertsson P, Eliasson T, et al. (March 2011). "Fatality, morbidity and quality of life in patients with refractory angina pectoris". International Journal of Cardiology. 147 (3): 377–82. doi:10.1016/j.ijcard.2009.09.538. PMID 19880202.
Doward LC, Spoorenberg A, Cook SA, Whalley D, Helliwell PS, Kay LJ, et al. (January 2003). "Development of the ASQoL: a quality of life instrument specific to ankylosing spondylitis". Annals of the Rheumatic Diseases. 62 (1): 20–6. doi:10.1136/ard.62.1.20. PMC 1754293. PMID 12480664.
van der Heijde DM, Revicki DA, Gooch KL, Wong RL, Kupper H, Harnam N, et al. (2009). "Physical function, disease activity, and health-related quality-of-life outcomes after 3 years of adalimumab treatment in patients with ankylosing spondylitis". Arthritis Research & Therapy. 11 (4): R124. doi:10.1186/ar2790. PMC 2745808. PMID 19686597.
Davis JC, Revicki D, van der Heijde DM, Rentz AM, Wong RL, Kupper H, Luo MP (August 2007). "Health-related quality of life outcomes in patients with active ankylosing spondylitis treated with adalimumab: results from a randomized controlled study". Arthritis and Rheumatism. 57 (6): 1050–7. doi:10.1002/art.22887. PMID 17665483.
Marzo-Ortega H, McGonagle D, O'Connor P, Emery P (September 2001). "Efficacy of etanercept in the treatment of the entheseal pathology in resistant spondylarthropathy: a clinical and magnetic resonance imaging study". Arthritis and Rheumatism. 44 (9): 2112–7. doi:10.1002/1529-0131(200109)44:9<2112::AID-ART363>3.0.CO;2-H. PMID 11592375.
Marzo-Ortega H, McGonagle D, Haugeberg G, Green MJ, Stewart SP, Emery P (October 2003). "Bone mineral density improvement in spondyloarthropathy after treatment with etanercept". Annals of the Rheumatic Diseases. 62 (10): 1020–1. doi:10.1136/ard.62.10.1020. PMC 1754338. PMID 12972490.
Juniper EF, Guyatt GH, Epstein RS, Ferrie PJ, Jaeschke R, Hiller TK (February 1992). "Evaluation of impairment of health related quality of life in asthma: development of a questionnaire for use in clinical trials". Thorax. 47 (2): 76–83. doi:10.1136/thx.47.2.76. PMC 463574. PMID 1549827.
Kim MA, Ye YM, Park JW, Lee JH, Lee SK, Kim CW, et al. (2013). "A computerized asthma-specific quality of life: a novel tool for reflecting asthma control and predicting exacerbation". International Archives of Allergy and Immunology. 163 (1): 36–42. doi:10.1159/000356336. PMID 24247849. S2CID 37156455.
Cano Fuentes G, Dastis Bendala C, Morales Barroso I, Manzanares Torné ML, Fernández Gregorio A, Martín Romana L (March 2014). "[A randomised clinical trial to evaluate the effectiveness of an educational intervention developed for adult asthmatics in a primary care centre]". Atencion Primaria. 46 (3): 117–39. doi:10.1016/j.aprim.2013.04.005. PMC 6983582. PMID 24176681.
Santino, Thayla A.; Chaves, Gabriela Ss; Freitas, Diana A.; Fregonezi, Guilherme Af; Mendonça, Karla Mpp (25 March 2020). "Breathing exercises for adults with asthma". The Cochrane Database of Systematic Reviews. 2020 (3): CD001277. doi:10.1002/14651858.CD001277.pub4. ISSN 1469-493X. PMC 7096190. PMID 32212422.
Meads DM, McKenna SP, Doward LC, Pokrzywinski R, Revicki D, Hunter C, Glendenning GA (May 2010). "Development and validation of the Asthma Life Impact Scale (ALIS)". Respiratory Medicine. 104 (5): 633–43. doi:10.1016/j.rmed.2009.11.023. PMID 20053543.
Arnold RJ, Zhou Y, Wong KS, Sung J (2005). "Psk8 Impact of Atopic Dermatitis on the Quality-Of-Life of Parents of Children with Atopic Dermatitis". Value in Health. 8 (3): 332. doi:10.1016/S1098-3015(10)62872-0.
McKenna SP, Whalley D, Dewar AL, Erdman RA, Kohlmann T, Niero M, et al. (February 2005). "International development of the Parents' Index of Quality of Life in Atopic Dermatitis (PIQoL-AD)". Quality of Life Research. 14 (1): 231–41. doi:10.1007/s11136-004-4231-z. PMID 15789957. S2CID 21412583.
McKenna SP, Whalley D, de Prost Y, Staab D, Huels J, Paul CF, van Assche D (March 2006). "Treatment of paediatric atopic dermatitis with pimecrolimus (Elidel, SDZ ASM 981): impact on quality of life and health-related quality of life". Journal of the European Academy of Dermatology and Venereology. 20 (3): 248–54. doi:10.1111/j.1468-3083.2006.01383.x. PMID 16503881. S2CID 34465416.
Wahn U, Bos JD, Goodfield M, Caputo R, Papp K, Manjra A, et al. (July 2002). "Efficacy and safety of pimecrolimus cream in the long-term management of atopic dermatitis in children". Pediatrics. 110 (1 Pt 1): e2. doi:10.1542/peds.110.1.e2. PMID 12093983.
Kapp A, Papp K, Bingham A, Fölster-Holst R, Ortonne JP, Potter PC, et al. (August 2002). "Long-term management of atopic dermatitis in infants with topical pimecrolimus, a nonsteroid anti-inflammatory drug". The Journal of Allergy and Clinical Immunology. 110 (2): 277–84. doi:10.1067/mai.2002.126500. PMID 12170269.
Rajmil L, Roizen M, Psy AU, Hidalgo-Rasmussen C, Fernández G, Dapueto JJ (2012). "Health-related quality of life measurement in children and adolescents in Ibero-American countries, 2000 to 2010". Value in Health. 15 (2): 312–22. doi:10.1016/j.jval.2011.11.028. PMID 22433763.
Meads DM, McKenna SP, Doward LC, Hampson N (2005). "Psk6 Interpreting Scores on the Quality of Life Index for Atopic Dermatitis (Qoliad)". Value in Health. 8 (3): 331–332. doi:10.1016/S1098-3015(10)62870-7.
Ehlken B, Kugland B, Schramm B, Quednau K, Berger K (2003). "Psn12 Quality-Of-Life in Patients Suffering from Atopic Dermatitis in Germany". Value in Health. 6 (6): 787–788. doi:10.1016/S1098-3015(10)62005-0.
Lambert J, Bostoen J, Geusens B, Bourgois J, Boone J, De Smedt D, Annemans L (January 2011). "A novel multidisciplinary educational programme for patients with chronic skin diseases: Ghent pilot project and first results". Archives of Dermatological Research. 303 (1): 57–63. doi:10.1007/s00403-010-1082-z. PMID 20842368. S2CID 20817434.
Bostoen J, Bracke S, De Keyser S, Lambert J (November 2012). "An educational programme for patients with psoriasis and atopic dermatitis: a prospective randomized controlled trial". The British Journal of Dermatology. 167 (5): 1025–31. doi:10.1111/j.1365-2133.2012.11113.x. PMID 22709422. S2CID 11139439.
Moed H, Yang Q, Oranje AP, Panda S, Van Der Wouden JC (2012). "Different strategies for using topical corticosteroids for established eczema". Cochrane Database of Systematic Reviews. doi:10.1002/14651858.CD010080. (Retracted, see doi:10.1002/14651858.cd010080.pub2. If this is an intentional citation to a retracted paper, please replace {{retracted|...}} with {{retracted|...|intentional=yes}}.)
Lecomte P, Lambert J, Degreef H, Lesaffre E, De Backer M (2006). "Psk6 Belgian Drug Utilisation Study of Elidel® in Routine Practice in Atopic Dermatitis". Value in Health. 9 (6): A268. doi:10.1016/S1098-3015(10)63408-0.
Dawson J, Fitzpatrick R, Murray D, Carr A (January 1998). "Questionnaire on the perceptions of patients about total knee replacement". The Journal of Bone and Joint Surgery. British Volume. 80 (1): 63–9. doi:10.1302/0301-620X.80B1.7859. PMID 9460955.
Xie F, Ye H, Zhang Y, Liu X, Lei T, Li SC (May 2011). "Extension from inpatients to outpatients: validity and reliability of the Oxford Knee Score in measuring health outcomes in patients with knee osteoarthritis". International Journal of Rheumatic Diseases. 14 (2): 206–10. doi:10.1111/j.1756-185X.2010.01580.x. PMID 21518321. S2CID 6498018.
McKenna SP, Hunt SM (March 1994). "A measure of family disruption for use in chickenpox and other childhood illnesses". Social Science & Medicine. 38 (5): 725–31. doi:10.1016/0277-9536(94)90463-4. PMID 8171351.
Mast TC, DeMuro-Mercon C, Kelly CM, Floyd LE, Walter EB (February 2009). "The impact of rotavirus gastroenteritis on the family". BMC Pediatrics. 9: 11. doi:10.1186/1471-2431-9-11. PMC 2649068. PMID 19200366.
Bächinger D, Röösli C, Ditzen B, Huber AM (October 2016). "Development and validation of the Zurich chronic middle ear inventory (ZCMEI-21): an electronic questionnaire for assessing quality of life in patients with chronic otitis media". European Archives of Oto-Rhino-Laryngology. 273 (10): 3073–81. doi:10.1007/s00405-016-3915-7. PMID 26869474. S2CID 10107433.
Chatzimichalis, Michail; Epprecht, Lorenz; Weder, Stefan; Shaul, Chanan; Engle Folchert, Kristi J.; Machala, Maria C.; Goosmann, Madeline M.; Naville, Marc; Zhu, Angela; Röösli, Christof; Lee, Daniel J.; Cass, Stephen P.; Briggs, Robert; Huber, Alexander M.; Bächinger, David (2019). "English translation and validation of the Zurich chronic middle ear inventory (ZCMEI‐21‐E) assessing quality of life in chronic otitis media: A prospective international multicentre study". Clinical Otolaryngology. 44 (3): 254–262. doi:10.1111/coa.13275. hdl:11343/285278. PMID 30588758. S2CID 58610511.
Ralli, Massimo; Quaranta, Nicola; Canale, Andrea; Röösli, Christof; Milella, Claudia; De Robertis, Valentina; De Soccio, Giulia; Greco, Antonio; Ralli, Giovanni; Albera, Roberto; De Vincentiis, Marco; Huber, Alexander M.; Bächinger, David (2019). "Cross-cultural Adaption and Validation of the Zurich Chronic Middle Ear Inventory Translated into Italian (ZCMEI-21-It)—a Prospective Multicenter Study" (PDF). Otology & Neurotology. 40 (3): 351–358. doi:10.1097/MAO.0000000000002131. PMID 30741898. S2CID 73436408.
Bächinger, David; Takagi, Daiki; Yamada, Hiroyuki; Teraoka, Masato; Okada, Masahiro; Hyodo, Jun; Röösli, Christof; Huber, Alexander M.; Hato, Naohito (2019). "Japanese translation, cross-cultural adaption and multicentre validation of the Zurich chronic middle ear inventory (ZCMEI-21-Jap)". Auris Nasus Larynx. 46 (1): 18–23. doi:10.1016/j.anl.2018.05.008. PMID 29871811. S2CID 46949869.
Weldam SW, Schuurmans MJ, Liu R, Lammers JW (May 2013). "Evaluation of Quality of Life instruments for use in COPD care and research: a systematic review". International Journal of Nursing Studies. 50 (5): 688–707. doi:10.1016/j.ijnurstu.2012.07.017. PMID 22921317.
López-Campos JL (2009). "[Importance of fatigue, sleep quality and mood in patients with chronic obstructive pulmonary disease and the need for measurement instruments]" [Importance of fatigue, sleep quality and mood in patients with chronic obstructive pulmonary disease and the need for measurement instruments]. Archivos de Bronconeumologia (in Spanish). 45 (Suppl 5): 2–6. doi:10.1016/S0300-2896(09)72948-5. PMID 20116755.
Amir M, Lewin-Epstein N, Becker G, Buskila D (October 2002). "Psychometric properties of the SF-12 (Hebrew version) in a primary care population in Israel". Medical Care. 40 (10): 918–28. doi:10.1097/00005650-200210000-00009. PMID 12395025. S2CID 25950087.
McKenna SP, Hunt SM (October 1992). "A new measure of quality of life in depression: testing the reliability and construct validity of the QLDS". Health Policy. 22 (3): 321–30. doi:10.1016/0168-8510(92)90005-V. PMID 10122731.
Detke MJ, Lu Y, Goldstein DJ, McNamara RK, Demitrack MA (2002). "Duloxetine 60 mg once daily dosing versus placebo in the acute treatment of major depression". Journal of Psychiatric Research. 36 (6): 383–90. doi:10.1016/S0022-3956(02)00060-2. PMID 12393307.
Hudson JI, Perahia DG, Gilaberte I, Wang F, Watkin JG, Detke MJ (August 2007). "Duloxetine in the treatment of major depressive disorder: an open-label study". BMC Psychiatry. 7: 43. doi:10.1186/1471-244X-7-43. PMC 2018694. PMID 17725843.
Kornstein SG, Wohlreich MM, Mallinckrodt CH, Watkin JG, Stewart DE (May 2006). "Duloxetine efficacy for major depressive disorder in male vs. female patients: data from 7 randomized, double-blind, placebo-controlled trials". The Journal of Clinical Psychiatry. 67 (5): 761–70. doi:10.4088/JCP.v67n0510. PMID 16841626.
Dunner DL, Kwong WJ, Houser TL, Richard NE, Donahue RM, Khan ZM (February 2001). "Improved Health-Related Quality of Life and Reduced Productivity Loss After Treatment With Bupropion Sustained Release: A Study in Patients With Major Depression". Primary Care Companion to the Journal of Clinical Psychiatry. 3 (1): 10–16. doi:10.4088/PCC.v03n0103. PMC 181153. PMID 15014623.
Vickrey BG (1993). "A procedure for developing a quality-of-life measure for epilepsy surgery patients". Epilepsia. 34 (Suppl. 4): S22-7. doi:10.1111/j.1528-1157.1993.tb05912.x. PMID 8348900. S2CID 33216251.
Selai CE, Elstner K, Trimble MR (January 2000). "Quality of life pre and post epilepsy surgery". Epilepsy Research. 38 (1): 67–74. doi:10.1016/s0920-1211(99)00075-3. PMID 10604607. S2CID 12205701.
da Conceição PO, Nascimento PP, Mazetto L, Alonso NB, Yacubian EM, de Araujo Filho GM (May 2013). "Are psychiatric disorders exclusion criteria for video-EEG monitoring and epilepsy surgery in patients with mesial temporal sclerosis?". Epilepsy & Behavior. 27 (2): 310–4. doi:10.1016/j.yebeh.2013.02.014. PMID 23523814. S2CID 566487.
Monteiro E, Osório F, Veriano A, Molina RS, Funayama SS, Terra VC, et al. (July 2012). "Validation of the Subjective Handicap of Epilepsy (SHE) in Brazilian patients with epilepsy". Epilepsy & Behavior. 24 (3): 345–51. doi:10.1016/j.yebeh.2012.04.129. PMID 22658433. S2CID 27975316.
Mangione CM, Lee PP, Gutierrez PR, Spritzer K, Berry S, Hays RD (July 2001). "Development of the 25-item National Eye Institute Visual Function Questionnaire". Archives of Ophthalmology. 119 (7): 1050–8. doi:10.1001/archopht.119.7.1050. PMID 11448327.
Orr P, Rentz AM, Margolis MK, Revicki DA, Dolan CM, Colman S, et al. (May 2011). "Validation of the National Eye Institute Visual Function Questionnaire-25 (NEI VFQ-25) in age-related macular degeneration". Investigative Ophthalmology & Visual Science. 52 (6): 3354–9. doi:10.1167/iovs.10-5645. PMID 21282568.
Kirwan C, Lanigan B, O'Keefe M (2012). "Vision-related quality of life assessment using the NEI-VFQ-25 in adolescents and young adults with a history of congenital cataract". Journal of Pediatric Ophthalmology and Strabismus. 49 (1): 26–31. doi:10.3928/01913913-20110517-02. PMID 21598855.
Naik RK, Gries KS, Rentz AM, Kowalski JW, Revicki DA (December 2013). "Psychometric evaluation of the National Eye Institute Visual Function Questionnaire and Visual Function Questionnaire Utility Index in patients with non-infectious intermediate and posterior uveitis". Quality of Life Research. 22 (10): 2801–8. doi:10.1007/s11136-013-0412-y. PMID 23645458. S2CID 50961.
Meads DM, Doward LC, McKenna SP, Fisk J, Twiss J, Eckert B (October 2009). "The development and validation of the Unidimensional Fatigue Impact Scale (U-FIS)". Multiple Sclerosis. 15 (10): 1228–38. doi:10.1177/1352458509106714. PMID 19556314. S2CID 23273125.
Elbers RG, Rietberg MB, van Wegen EE, Verhoef J, Kramer SF, Terwee CB, Kwakkel G (August 2012). "Self-report fatigue questionnaires in multiple sclerosis, Parkinson's disease and stroke: a systematic review of measurement properties". Quality of Life Research. 21 (6): 925–44. doi:10.1007/s11136-011-0009-2. PMC 3389599. PMID 22012025.
Richardson J, Iezzi A, Khan MA, Maxwell A (2014). "Validity and reliability of the Assessment of Quality of Life (AQoL)-8D multi-attribute utility instrument". The Patient. 7 (1): 85–96. doi:10.1007/s40271-013-0036-x. PMC 3929769. PMID 24271592.
Maxwell A, Özmen M, Iezzi A, Richardson J (December 2016). "Deriving population norms for the AQoL-6D and AQoL-8D multi-attribute utility instruments from web-based data". Quality of Life Research. 25 (12): 3209–3219. doi:10.1007/s11136-016-1337-z. PMID 27344318. S2CID 2153470.
Kattan M (2009). "Quality of Well-Being Scale". Encyclopedia of Medical Decision Making. SAGE Publications. pp. 938–940. doi:10.4135/9781412971980. ISBN 978-1-4129-7198-0.
Kaplan RM, Patterson TL, Kerner DN, Atkinson JH, Heaton RK, Grant I (August 1997). "The Quality of Well-Being scale in asymptomatic HIV-infected patients. HNRC Group. HIV Neural Behavioral Research Center". Quality of Life Research. 6 (6): 507–14. doi:10.1023/A:1018456031659. PMID 9330551. S2CID 1253643.
Hughes TE, Kaplan RM, Coons SJ, Draugalis JR, Johnson JA, Patterson TL (1997). "Construct validities of the Quality of Well-Being Scale and the MOS-HIV-34 Health Survey for HIV-infected patients". Medical Decision Making. 17 (4): 439–46. CiteSeerX 10.1.1.1004.6037. doi:10.1177/0272989X9701700409. PMID 9343802. S2CID 22869619.
Frosch DL, Kaplan RM, Ganiats TG, Groessl EJ, Sieber WJ, Weisman MH (February 2004). "Validity of self-administered quality of well-being scale in musculoskeletal disease". Arthritis and Rheumatism. 51 (1): 28–33. doi:10.1002/art.20071. PMID 14872452.
Brooks R (July 1996). "EuroQol: the current state of play". Health Policy. 37 (1): 53–72. doi:10.1016/0168-8510(96)00822-6. PMID 10158943.
Desroziers K, Aballéa S, Maman K, Nazir J, Odeyemi I, Hakimi Z (November 2013). "Estimating EQ-5D and OAB-5D health state utilities for patients with overactive bladder". Health and Quality of Life Outcomes. 11 (1): 200. doi:10.1186/1477-7525-11-200. PMC 3842710. PMID 24246044.
Bouwmans C, van der Kolk A, Oppe M, Schawo S, Stolk E, van Agthoven M, et al. (December 2014). "Validity and responsiveness of the EQ-5D and the KIDSCREEN-10 in children with ADHD". The European Journal of Health Economics. 15 (9): 967–77. doi:10.1007/s10198-013-0540-x. PMID 24233919. S2CID 20429564.
Parthan A, Kruse M, Agodoa I, Silverman S, Orwoll E (February 2014). "Denosumab: a cost-effective alternative for older men with osteoporosis from a Swedish payer perspective". Bone. 59: 105–13. doi:10.1016/j.bone.2013.11.002. PMID 24231131.
Hunt SM, McKenna SP, McEwen J, Williams J, Papp E (May 1981). "The Nottingham Health Profile: subjective health status and medical consultations". Social Science & Medicine, Part A. 15 (3 Pt 1): 221–9. doi:10.1016/0271-7123(81)90005-5. PMID 6973203.
Ebrahim S, Barer D, Nouri F (June 1986). "Use of the Nottingham Health Profile with patients after a stroke". Journal of Epidemiology and Community Health. 40 (2): 166–9. doi:10.1136/jech.40.2.166. PMC 1052513. PMID 3746178.
Johansen KL, Finkelstein FO, Revicki DA, Evans C, Wan S, Gitlin M, Agodoa IL (June 2012). "Systematic review of the impact of erythropoiesis-stimulating agents on fatigue in dialysis patients". Nephrology, Dialysis, Transplantation. 27 (6): 2418–25. doi:10.1093/ndt/gfr697. PMID 22187314.
Behan LA, Rogers B, Hannon MJ, O'Kelly P, Tormey W, Smith D, et al. (October 2011). "Optimizing glucocorticoid replacement therapy in severely adrenocorticotropin-deficient hypopituitary male patients". Clinical Endocrinology. 75 (4): 505–13. doi:10.1111/j.1365-2265.2011.04074.x. PMID 21521342. S2CID 205286522.
Aydemir G, Tezer MS, Borman P, Bodur H, Unal A (June 2006). "Treatment of tinnitus with transcutaneous electrical nerve stimulation improves patients' quality of life". The Journal of Laryngology and Otology. 120 (6): 442–5. doi:10.1017/S0022215106000910. PMID 16556347. S2CID 43430574.
Ware JE, Sherbourne CD (June 1992). "The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection". Medical Care. 30 (6): 473–83. doi:10.1097/00005650-199206000-00002. PMID 1593914. S2CID 44458175.
Abulhasan M, Elshazly TA, Eida M, Albadry A (September 2013). "Giardia intestinalis in patients with nonulcer dyspepsia". Arab Journal of Gastroenterology. 14 (3): 126–9. doi:10.1016/j.ajg.2013.08.004. PMID 24206742.
Cuevas BT, Hughes DC, Parma DL, Treviño-Whitaker RA, Ghosh S, Li R, Ramirez AG (April 2014). "Motivation, exercise, and stress in breast cancer survivors". Supportive Care in Cancer. 22 (4): 911–7. doi:10.1007/s00520-013-2038-6. PMC 3943705. PMID 24249424.
Avidan A, Hays RD, Diaz N, Bordelon Y, Thompson AW, Vassar SD, Vickrey BG (2013). "Associations of sleep disturbance symptoms with health-related quality of life in Parkinson's disease". The Journal of Neuropsychiatry and Clinical Neurosciences. 25 (4): 319–26. doi:10.1176/appi.neuropsych.12070175. PMC 3960993. PMID 24247858.
Gilson BS, Gilson JS, Bergner M, Bobbit RA, Kressel S, Pollard WE, Vesselago M (December 1975). "The sickness impact profile. Development of an outcome measure of health care". American Journal of Public Health. 65 (12): 1304–10. doi:10.2105/AJPH.65.12.1304. PMC 1776251. PMID 1200192.
van Straten A, de Haan RJ, Limburg M, Schuling J, Bossuyt PM, van den Bos GA (November 1997). "A stroke-adapted 30-item version of the Sickness Impact Profile to assess quality of life (SA-SIP30)". Stroke. 28 (11): 2155–61. doi:10.1161/01.STR.28.11.2155. PMID 9368557.
Hulsebos RG, Beltman FW, dos Reis Miranda D, Spangenberg JF (1991). "Measuring quality of life with the sickness impact profile: a pilot study". Intensive Care Medicine. 17 (5): 285–8. doi:10.1007/BF01713939. PMID 1939874. S2CID 6394744.
Horsman J, Furlong W, Feeny D, Torrance G (October 2003). "The Health Utilities Index (HUI): concepts, measurement properties and applications". Health and Quality of Life Outcomes. 1: 54. doi:10.1186/1477-7525-1-54. PMC 293474. PMID 14613568.
Furlong WJ, Feeny DH, Torrance GW, Barr RD (July 2001). "The Health Utilities Index (HUI) system for assessing health-related quality of life in clinical studies". Annals of Medicine. 33 (5): 375–84. doi:10.3109/07853890109002092. PMID 11491197. S2CID 37589566.
Davis EM, Lynd LD, Grubisic M, Kopec JA, Sayre EC, Cibere J, et al. (December 2013). "Responsiveness of health state utility values in knee osteoarthritis". The Journal of Rheumatology. 40 (12): 2075–82. doi:10.3899/jrheum.130176. PMID 24187098. S2CID 35129983.
Harvie HS, Shea JA, Andy UU, Propert K, Schwartz JS, Arya LA (January 2014). "Validity of utility measures for women with urge, stress, and mixed urinary incontinence". American Journal of Obstetrics and Gynecology. 210 (1): 85.e1–6. doi:10.1016/j.ajog.2013.09.025. PMID 24055585.
Ebrahim S, Parshuram C (March 2015). "Comparison of utility scores from the Visual Analog Scale and Health Utilities Index 3 in children following pediatric intensive care unit admission". Journal of Child Health Care. 19 (1): 53–62. doi:10.1177/1367493513496909. PMID 23939724. S2CID 23422052.
Doward LC, McKenna SP, Meads DM (2003). "Pin41 Development of the Herpes Outbreak Impact Questionnaire (Hoiq)". Value in Health. 6 (6): 760–761. doi:10.1016/S1098-3015(10)61938-9.
Meads DM, McKenna SP, Bonney MA, Bloch MT (2009). "Further validation and responsiveness assessment of the Herpes Outbreak Impact Questionnaire and Herpes Symptom Checklist". Value in Health. 12 (2): 397–400. doi:10.1111/j.1524-4733.2008.00450.x. PMID 18783390.
Doward LC, McKenna SP, Meads DM, Kahler K, Frech F (2009). "The development of the Herpes Symptom Checklist and the Herpes Outbreak Impact Questionnaire". Value in Health. 12 (1): 139–45. doi:10.1111/j.1524-4733.2008.00424.x. PMID 18647252.
Twiss J, Mckenna S, Bloch M, Bonney MA (2011). "PIN5 Patient and Clinician Perceived Benefit of Early Consumption of Famciclovir for the Treatment of Herpes Outbreaks". Value in Health. 14 (7): A266. doi:10.1016/j.jval.2011.08.193.
Doward LC, McKenna SP, Kohlmann T, Niero M, Patrick D, Spencer B, Thorsen H (February 1998). "The international development of the RGHQoL: a quality of life measure for recurrent genital herpes". Quality of Life Research. 7 (2): 143–53. doi:10.1023/A:1008857426633. PMID 9523496. S2CID 19058639.
Bartlett BL, Tyring SK, Fife K, Gnann JW, Hadala JT, Kianifard F, Berber E (October 2008). "Famciclovir treatment options for patients with frequent outbreaks of recurrent genital herpes: the RELIEF trial". Journal of Clinical Virology. 43 (2): 190–5. doi:10.1016/j.jcv.2008.06.004. PMID 18621575.
Patel R, Tyring S, Strand A, Price MJ, Grant DM (December 1999). "Impact of suppressive antiviral therapy on the health related quality of life of patients with recurrent genital herpes infection". Sexually Transmitted Infections. 75 (6): 398–402. doi:10.1136/sti.75.6.398. PMC 1758256. PMID 10754944.
Spencer B, Leplège A, Ecosse E (June 1999). "Recurrent genital herpes and quality of life in France". Quality of Life Research. 8 (4): 365–71. doi:10.1023/A:1008904227182. PMID 10472169. S2CID 24573908.
Patel R, Boselli F, Cairo I, Barnett G, Price M, Wulf HC (October 2001). "Patients' perspectives on the burden of recurrent genital herpes". International Journal of STD & AIDS. 12 (10): 640–5. doi:10.1258/0956462011923859. PMID 11564330. S2CID 32358251.
Wirén L, Whalley D, McKenna S, Wilhelmsen L (February 2000). "Application of a disease-specific, quality-of-life measure (QoL-AGHDA) in growth hormone-deficient adults and a random population sample in Sweden: validation of the measure by rasch analysis". Clinical Endocrinology. 52 (2): 143–52. doi:10.1046/j.1365-2265.2000.00899.x. PMID 10671940. S2CID 11256536.
Moock J, Friedrich N, Völzke H, Spielhagen C, Nauck M, Koltowska-Häggström M, et al. (October 2011). "Prediction of improvement in quality of life (QoL-AGHDA) in adults with growth hormone deficiency by normative reference limits: data of the German KIMS cohort". Growth Hormone & IGF Research. 21 (5): 272–8. doi:10.1016/j.ghir.2011.07.005. PMID 21865066.
Gilet H, Chachuat A, Viala-Danten M, Auzière S, Koltowska-Häggström M (2010). "Application of the disease-specific Quality of Life Assessment of Growth Hormone Deficiency in Adults (QoL-AGHDA) questionnaire in a general population: results from a French panel study". Value in Health. 13 (4): 495–500. doi:10.1111/j.1524-4733.2009.00689.x. PMID 20102556.
Badia X, Lucas A, Sanmartí A, Roset M, Ulied A (December 1998). "One-year follow-up of quality of life in adults with untreated growth hormone deficiency". Clinical Endocrinology. 49 (6): 765–71. doi:10.1046/j.1365-2265.1998.00634.x. PMID 10209564. S2CID 31044474.
Mukherjee A, Tolhurst-Cleaver S, Ryder WD, Smethurst L, Shalet SM (March 2005). "The characteristics of quality of life impairment in adult growth hormone (GH)-deficient survivors of cancer and their response to GH replacement therapy". The Journal of Clinical Endocrinology and Metabolism. 90 (3): 1542–9. doi:10.1210/jc.2004-0832. PMID 15613427.
Gutiérrez LP, Kołtowska-Häggström M, Jönsson PJ, Mattsson AF, Svensson D, Westberg B, Luger A (January 2008). "Registries as a tool in evidence-based medicine: example of KIMS (Pfizer International Metabolic Database)". Pharmacoepidemiology and Drug Safety. 17 (1): 90–102. doi:10.1002/pds.1510. PMID 17957812. S2CID 31206757.
Hays RD, Kallich JD, Mapes DL, Coons SJ, Carter WB (October 1994). "Development of the kidney disease quality of life (KDQOL) instrument". Quality of Life Research. 3 (5): 329–38. doi:10.1007/BF00451725. PMID 7841967. S2CID 41098376.
Fan WF, Zhang Q, Luo LH, Niu JY, Gu Y (2013). "Study on the clinical significance and related factors of thirst and xerostomia in maintenance hemodialysis patients". Kidney & Blood Pressure Research. 37 (4–5): 464–74. doi:10.1159/000355717. PMID 24247643. S2CID 207708239.
Cortés-Sanabria L, Paredes-Ceseña CA, Herrera-Llamas RM, Cruz-Bueno Y, Soto-Molina H, Pazarín L, et al. (November 2013). "Comparison of cost-utility between automated peritoneal dialysis and continuous ambulatory peritoneal dialysis". Archives of Medical Research. 44 (8): 655–61. doi:10.1016/j.arcmed.2013.10.017. PMID 24211750.
Fidan F, Alkan BM, Tosun A, Altunoğlu A, Ardıçoğlu Ö (February 2016). "Quality of life and correlation with musculoskeletal problems, hand disability and depression in patients with hemodialysis". International Journal of Rheumatic Diseases. 19 (2): 159–66. doi:10.1111/1756-185X.12171. PMID 24176031. S2CID 27610428.
Patrick DL, Hurst BC, Hughes J (2000). "Further development and testing of the migraine-specific quality of life (MSQOL) measure". Headache. 40 (7): 550–60. doi:10.1046/j.1526-4610.2000.00086.x. PMID 10940093. S2CID 23808987.
Garcia-Monco JC, Foncea N, Bilbao A, Ruiz de Velasco I, Gomez-Beldarrain M (August 2007). "Impact of preventive therapy with nadolol and topiramate on the quality of life of migraine patients". Cephalalgia. 27 (8): 920–8. doi:10.1111/j.1468-2982.2007.01367.x. PMID 17645757. S2CID 9406164.
Spigt M, Weerkamp N, Troost J, van Schayck CP, Knottnerus JA (August 2012). "A randomized trial on the effects of regular water intake in patients with recurrent headaches". Family Practice. 29 (4): 370–5. doi:10.1093/fampra/cmr112. PMID 22113647.
Mérelle SY, Sorbi MJ, van Doornen LJ, Passchier J (February 2008). "Migraine patients as trainers of their fellow patients in non-pharmacological preventive attack management: short-term effects of a randomized controlled trial". Cephalalgia. 28 (2): 127–38. doi:10.1111/j.1468-2982.2007.01472.x. PMID 18197883. S2CID 44246726.
Doward LC, McKenna SP, Meads DM, Twiss J, Eckert BJ (September 2009). "The development of patient-reported outcome indices for multiple sclerosis (PRIMUS)". Multiple Sclerosis. 15 (9): 1092–102. doi:10.1177/1352458509106513. PMID 19556315. S2CID 7459469.
"Poster I". Multiple Sclerosis Journal. 18 (4 Suppl): 55–277. 2012. doi:10.1177/1352458512459019. S2CID 208625075.
Mäurer M, Ortler S, Baier M, Meergans M, Scherer P, Hofmann W, Tracik F (April 2013). "Randomised multicentre trial on safety and efficacy of rivastigmine in cognitively impaired multiple sclerosis patients". Multiple Sclerosis. 19 (5): 631–8. doi:10.1177/1352458512463481. PMID 23069874. S2CID 6838286.
Keenan AM, McKenna SP, Doward LC, Conaghan PG, Emery P, Tennant A (June 2008). "Development and validation of a needs-based quality of life instrument for osteoarthritis". Arthritis and Rheumatism. 59 (6): 841–8. doi:10.1002/art.23714. PMID 18512719.
Abbas M, Schwartz ME, Smith FJ, McLean WH, Hull PR (2014). "PCQoL: A Quality of Life Assessment Measure for Pachyonychia Congenita". Journal of Cutaneous Medicine and Surgery. 19 (1): 57–65. doi:10.2310/7750.2014.14017. PMID 25775665. S2CID 221801367.
de Jong Z, van der Heijde D, McKenna SP, Whalley D (August 1997). "The reliability and construct validity of the RAQoL: a rheumatoid arthritis-specific quality of life instrument". British Journal of Rheumatology. 36 (8): 878–83. doi:10.1093/rheumatology/36.8.878. PMID 9291857. S2CID 20190839.
Adams J, Chapman J, Bradley S, Ryan SJ (March 2013). "Literacy levels required to complete routinely used patient-reported outcome measures in rheumatology". Rheumatology. 52 (3): 460–4. doi:10.1093/rheumatology/kes296. PMID 23118412.
Dougados M, Kissel K, Sheeran T, Tak PP, Conaghan PG, Mola EM, et al. (January 2013). "Adding tocilizumab or switching to tocilizumab monotherapy in methotrexate inadequate responders: 24-week symptomatic and structural results of a 2-year randomised controlled strategy trial in rheumatoid arthritis (ACT-RAY)". Annals of the Rheumatic Diseases. 72 (1): 43–50. doi:10.1136/annrheumdis-2011-201282. PMC 3551223. PMID 22562983.
Fahy, Sarah. "Efficacy of tocilizumab in patients with rheumatoid arthritis". Current Controlled Trials. Springer Science+Business Media. doi:10.1186/ISRCTN21216199. Retrieved 2 October 2013.
Quinn MA, Conaghan PG, O'Connor PJ, Karim Z, Greenstein A, Brown A, et al. (January 2005). "Very early treatment with infliximab in addition to methotrexate in early, poor-prognosis rheumatoid arthritis reduces magnetic resonance imaging evidence of synovitis and damage, with sustained benefit after infliximab withdrawal: results from a twelve-month randomized, double-blind, placebo-controlled trial". Arthritis and Rheumatism. 52 (1): 27–35. doi:10.1002/art.20712. PMID 15641102.
Bejarano V, Conaghan PG, Quinn MA, Saleem B, Emery P (October 2010). "Benefits 8 years after a remission induction regime with an infliximab and methotrexate combination in early rheumatoid arthritis". Rheumatology. 49 (10): 1971–4. doi:10.1093/rheumatology/keq194. PMID 20595536.
McKenna SP, Ratcliffe J, Meads DM, Brazier JE (August 2008). "Development and validation of a preference based measure derived from the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) for use in cost utility analyses". Health and Quality of Life Outcomes. 6: 65. doi:10.1186/1477-7525-6-65. PMC 2546377. PMID 18718016.
McKenna SP, Doughty N, Meads DM, Doward LC, Pepke-Zaba J (February 2006). "The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR): a measure of health-related quality of life and quality of life for patients with pulmonary hypertension". Quality of Life Research. 15 (1): 103–15. doi:10.1007/s11136-005-3513-4. PMID 16411035. S2CID 23830883.
Channick RN, Voswinckel R, Rubin LJ (2012). "Inhaled treprostinil: a therapeutic review". Drug Design, Development and Therapy. 6: 19–28. doi:10.2147/DDDT.S19281. PMC 3267519. PMID 22291467.
Chen H, Rosenzweig EB, Gotzkowsky SK, Arneson C, Nelsen AC, Bourge RC (March 2013). "Treatment satisfaction is associated with improved quality of life in patients treated with inhaled treprostinil for pulmonary arterial hypertension". Health and Quality of Life Outcomes. 11: 31. doi:10.1186/1477-7525-11-31. PMC 3610124. PMID 23496856.
Tay EL, Papaphylactou M, Diller GP, Alonso-Gonzalez R, Inuzuka R, Giannakoulas G, et al. (June 2011). "Quality of life and functional capacity can be improved in patients with Eisenmenger syndrome with oral sildenafil therapy". International Journal of Cardiology. 149 (3): 372–6. doi:10.1016/j.ijcard.2010.02.020. PMID 20304507.
Suntharalingam J, Treacy CM, Doughty NJ, Goldsmith K, Soon E, Toshner MR, et al. (August 2008). "Long-term use of sildenafil in inoperable chronic thromboembolic pulmonary hypertension". Chest. 134 (2): 229–236. doi:10.1378/chest.07-2681. PMID 18263674.
McKenna SP, Lebwohl M, Kahler KN (June 2005). "Development of the US PSORIQoL: a psoriasis-specific measure of quality of life". International Journal of Dermatology. 44 (6): 462–9. doi:10.1111/j.1365-4632.2005.01941.x. PMID 15941432. S2CID 22163460.
McKenna SP, Cook SA, Whalley D, Doward LC, Richards HL, Griffiths CE, Van Assche D (August 2003). "Development of the PSORIQoL, a psoriasis-specific measure of quality of life designed for use in clinical practice and trials". The British Journal of Dermatology. 149 (2): 323–31. doi:10.1046/j.1365-2133.2003.05492.x. PMID 12932239. S2CID 26091210.
Brodszky V, Péntek M, Bálint PV, Géher P, Hajdu O, Hodinka L, et al. (August 2010). "Comparison of the Psoriatic Arthritis Quality of Life (PsAQoL) questionnaire, the functional status (HAQ) and utility (EQ-5D) measures in psoriatic arthritis: results from a cross-sectional survey". Scandinavian Journal of Rheumatology. 39 (4): 303–9. doi:10.3109/03009740903468982. PMID 20166848. S2CID 26425942.
McKenna SP, Doward LC, Whalley D, Tennant A, Emery P, Veale DJ (February 2004). "Development of the PsAQoL: a quality of life instrument specific to psoriatic arthritis". Annals of the Rheumatic Diseases. 63 (2): 162–9. doi:10.1136/ard.2003.006296. PMC 1754880. PMID 14722205.
Marzo-Ortega H, McGonagle D, Rhodes LA, Tan AL, Conaghan PG, O'Connor P, et al. (June 2007). "Efficacy of infliximab on MRI-determined bone oedema in psoriatic arthritis". Annals of the Rheumatic Diseases. 66 (6): 778–81. doi:10.1136/ard.2006.063818. PMC 1954680. PMID 17185324.
Brown BC, McKenna SP, Solomon M, Wilburn J, McGrouther DA, Bayat A (May 2010). "The patient-reported impact of scars measure: development and validation". Plastic and Reconstructive Surgery. 125 (5): 1439–49. doi:10.1097/PRS.0b013e3181d4fd89. PMID 20440163.
Wilburn J, McKenna SP, Brown B, Solomon M, McGrouther DA, Bayat A (2009). "Pss36 Development and Validation of the Patient-Reported Impact of Scars Measure (Prism)". Value in Health. 12 (7): A459. doi:10.1016/S1098-3015(10)75273-6.
Doward LC, McKenna SP, Whalley D, Tennant A, Griffiths B, Emery P, Veale DJ (February 2009). "The development of the L-QoL: a quality-of-life instrument specific to systemic lupus erythematosus". Annals of the Rheumatic Diseases. 68 (2): 196–200. doi:10.1136/ard.2007.086009. PMID 18385276. S2CID 23886698.
Castelino M, Abbott J, McElhone K, Teh LS (April 2013). "Comparison of the psychometric properties of health-related quality of life measures used in adults with systemic lupus erythematosus: a review of the literature". Rheumatology. 52 (4): 684–96. doi:10.1093/rheumatology/kes370. PMID 23264550.
Yazdany J (November 2011). "Health-related quality of life measurement in adult systemic lupus erythematosus: Lupus Quality of Life (LupusQoL), Systemic Lupus Erythematosus-Specific Quality of Life Questionnaire (SLEQOL), and Systemic Lupus Erythematosus Quality of Life Questionnaire (L-QoL)". Arthritis Care & Research. 63 Suppl 11 (11): S413-9. doi:10.1002/acr.20636. PMC 3437754. PMID 22588761.

epires-journal.com

Selai CE, Elstner K, Trimble MR (January 2000). "Quality of life pre and post epilepsy surgery". Epilepsy Research. 38 (1): 67–74. doi:10.1016/s0920-1211(99)00075-3. PMID 10604607. S2CID 12205701.

galen-research.com

"ACQLI" (PDF). Galen-Research.com. Galen Research. Retrieved 11 November 2013.
Crawford SR. "Further Developments of the Asthma Life Impact Scale (ALIS)" (PDF). Galen-Research.com. Galen Research. Retrieved 14 October 2013.
"Measures Database". Galen-Research.com. Galen Research. Retrieved 11 October 2013.
"Measures Database". Galen-Research.com. Galen Research. Retrieved 20 November 2013.
"Measures Database". Galen-Research.com. Galen Research. Retrieved 2 October 2013.
"Measures Database". Galen-Research.com. Galen Research. Retrieved 13 November 2013.

handle.net

hdl.handle.net

Chatzimichalis, Michail; Epprecht, Lorenz; Weder, Stefan; Shaul, Chanan; Engle Folchert, Kristi J.; Machala, Maria C.; Goosmann, Madeline M.; Naville, Marc; Zhu, Angela; Röösli, Christof; Lee, Daniel J.; Cass, Stephen P.; Briggs, Robert; Huber, Alexander M.; Bächinger, David (2019). "English translation and validation of the Zurich chronic middle ear inventory (ZCMEI‐21‐E) assessing quality of life in chronic otitis media: A prospective international multicentre study". Clinical Otolaryngology. 44 (3): 254–262. doi:10.1111/coa.13275. hdl:11343/285278. PMID 30588758. S2CID 58610511.

neurology.org

Cascione M, Wynn D, Agashivala N, McCague K, Pestreich L, Schofield L, Kim E, Barbato L (12 February 2013). "Patient-Reported Treatment Satisfaction, Reasons for Therapy Change, and Health-Related Quality of Life at Baseline from the Trial To Evaluate Patient OutComes, Safety and Tolerability of Fingolimod". Neurology. 80 (1). Retrieved 9 October 2013.

nice.org.uk

"Psoriasis: management of psoriasis" (PDF). NICE.org.uk. National Institute for Health and Care Excellence. Archived from the original (PDF) on 2013-11-13. Retrieved 13 November 2013.

nih.gov

pubmed.ncbi.nlm.nih.gov

Levy K, Lanctôt KL, Farber SB, Li A, Herrmann N (March 2012). "Does pharmacological treatment of neuropsychiatric symptoms in Alzheimer's disease relieve caregiver burden?". Drugs & Aging. 29 (3): 167–179. doi:10.2165/11599140-000000000-00000. PMID 22350526. S2CID 207301505.
Spertus JA, Winder JA, Dewhurst TA, Deyo RA, Prodzinski J, McDonell M, Fihn SD (February 1995). "Development and evaluation of the Seattle Angina Questionnaire: a new functional status measure for coronary artery disease". Journal of the American College of Cardiology. 25 (2): 333–41. doi:10.1016/0735-1097(94)00397-9. PMID 7829785.
Jitta DJ, DeJongste MJ, Kliphuis CM, Staal MJ (January 2011). "Multimorbidity, the predominant predictor of quality-of-life, following successful spinal cord stimulation for angina pectoris". Neuromodulation. 14 (1): 13–8, discussion 18–9. doi:10.1111/j.1525-1403.2010.00321.x. PMID 21992156. S2CID 35519046.
Villano A, Di Franco A, Nerla R, Sestito A, Tarzia P, Lamendola P, et al. (July 2013). "Effects of ivabradine and ranolazine in patients with microvascular angina pectoris". The American Journal of Cardiology. 112 (1): 8–13. doi:10.1016/j.amjcard.2013.02.045. PMID 23558043.
Andréll P, Ekre O, Grip L, Währborg P, Albertsson P, Eliasson T, et al. (March 2011). "Fatality, morbidity and quality of life in patients with refractory angina pectoris". International Journal of Cardiology. 147 (3): 377–82. doi:10.1016/j.ijcard.2009.09.538. PMID 19880202.
Doward LC, Spoorenberg A, Cook SA, Whalley D, Helliwell PS, Kay LJ, et al. (January 2003). "Development of the ASQoL: a quality of life instrument specific to ankylosing spondylitis". Annals of the Rheumatic Diseases. 62 (1): 20–6. doi:10.1136/ard.62.1.20. PMC 1754293. PMID 12480664.
van der Heijde DM, Revicki DA, Gooch KL, Wong RL, Kupper H, Harnam N, et al. (2009). "Physical function, disease activity, and health-related quality-of-life outcomes after 3 years of adalimumab treatment in patients with ankylosing spondylitis". Arthritis Research & Therapy. 11 (4): R124. doi:10.1186/ar2790. PMC 2745808. PMID 19686597.
Davis JC, Revicki D, van der Heijde DM, Rentz AM, Wong RL, Kupper H, Luo MP (August 2007). "Health-related quality of life outcomes in patients with active ankylosing spondylitis treated with adalimumab: results from a randomized controlled study". Arthritis and Rheumatism. 57 (6): 1050–7. doi:10.1002/art.22887. PMID 17665483.
Marzo-Ortega H, McGonagle D, O'Connor P, Emery P (September 2001). "Efficacy of etanercept in the treatment of the entheseal pathology in resistant spondylarthropathy: a clinical and magnetic resonance imaging study". Arthritis and Rheumatism. 44 (9): 2112–7. doi:10.1002/1529-0131(200109)44:9<2112::AID-ART363>3.0.CO;2-H. PMID 11592375.
Marzo-Ortega H, McGonagle D, Haugeberg G, Green MJ, Stewart SP, Emery P (October 2003). "Bone mineral density improvement in spondyloarthropathy after treatment with etanercept". Annals of the Rheumatic Diseases. 62 (10): 1020–1. doi:10.1136/ard.62.10.1020. PMC 1754338. PMID 12972490.
Juniper EF, Guyatt GH, Epstein RS, Ferrie PJ, Jaeschke R, Hiller TK (February 1992). "Evaluation of impairment of health related quality of life in asthma: development of a questionnaire for use in clinical trials". Thorax. 47 (2): 76–83. doi:10.1136/thx.47.2.76. PMC 463574. PMID 1549827.
Kim MA, Ye YM, Park JW, Lee JH, Lee SK, Kim CW, et al. (2013). "A computerized asthma-specific quality of life: a novel tool for reflecting asthma control and predicting exacerbation". International Archives of Allergy and Immunology. 163 (1): 36–42. doi:10.1159/000356336. PMID 24247849. S2CID 37156455.
Cano Fuentes G, Dastis Bendala C, Morales Barroso I, Manzanares Torné ML, Fernández Gregorio A, Martín Romana L (March 2014). "[A randomised clinical trial to evaluate the effectiveness of an educational intervention developed for adult asthmatics in a primary care centre]". Atencion Primaria. 46 (3): 117–39. doi:10.1016/j.aprim.2013.04.005. PMC 6983582. PMID 24176681.
Santino, Thayla A.; Chaves, Gabriela Ss; Freitas, Diana A.; Fregonezi, Guilherme Af; Mendonça, Karla Mpp (25 March 2020). "Breathing exercises for adults with asthma". The Cochrane Database of Systematic Reviews. 2020 (3): CD001277. doi:10.1002/14651858.CD001277.pub4. ISSN 1469-493X. PMC 7096190. PMID 32212422.
Meads DM, McKenna SP, Doward LC, Pokrzywinski R, Revicki D, Hunter C, Glendenning GA (May 2010). "Development and validation of the Asthma Life Impact Scale (ALIS)". Respiratory Medicine. 104 (5): 633–43. doi:10.1016/j.rmed.2009.11.023. PMID 20053543.
McKenna SP, Whalley D, Dewar AL, Erdman RA, Kohlmann T, Niero M, et al. (February 2005). "International development of the Parents' Index of Quality of Life in Atopic Dermatitis (PIQoL-AD)". Quality of Life Research. 14 (1): 231–41. doi:10.1007/s11136-004-4231-z. PMID 15789957. S2CID 21412583.
McKenna SP, Whalley D, de Prost Y, Staab D, Huels J, Paul CF, van Assche D (March 2006). "Treatment of paediatric atopic dermatitis with pimecrolimus (Elidel, SDZ ASM 981): impact on quality of life and health-related quality of life". Journal of the European Academy of Dermatology and Venereology. 20 (3): 248–54. doi:10.1111/j.1468-3083.2006.01383.x. PMID 16503881. S2CID 34465416.
Wahn U, Bos JD, Goodfield M, Caputo R, Papp K, Manjra A, et al. (July 2002). "Efficacy and safety of pimecrolimus cream in the long-term management of atopic dermatitis in children". Pediatrics. 110 (1 Pt 1): e2. doi:10.1542/peds.110.1.e2. PMID 12093983.
Kapp A, Papp K, Bingham A, Fölster-Holst R, Ortonne JP, Potter PC, et al. (August 2002). "Long-term management of atopic dermatitis in infants with topical pimecrolimus, a nonsteroid anti-inflammatory drug". The Journal of Allergy and Clinical Immunology. 110 (2): 277–84. doi:10.1067/mai.2002.126500. PMID 12170269.
Rajmil L, Roizen M, Psy AU, Hidalgo-Rasmussen C, Fernández G, Dapueto JJ (2012). "Health-related quality of life measurement in children and adolescents in Ibero-American countries, 2000 to 2010". Value in Health. 15 (2): 312–22. doi:10.1016/j.jval.2011.11.028. PMID 22433763.
Lambert J, Bostoen J, Geusens B, Bourgois J, Boone J, De Smedt D, Annemans L (January 2011). "A novel multidisciplinary educational programme for patients with chronic skin diseases: Ghent pilot project and first results". Archives of Dermatological Research. 303 (1): 57–63. doi:10.1007/s00403-010-1082-z. PMID 20842368. S2CID 20817434.
Bostoen J, Bracke S, De Keyser S, Lambert J (November 2012). "An educational programme for patients with psoriasis and atopic dermatitis: a prospective randomized controlled trial". The British Journal of Dermatology. 167 (5): 1025–31. doi:10.1111/j.1365-2133.2012.11113.x. PMID 22709422. S2CID 11139439.
Dawson J, Fitzpatrick R, Murray D, Carr A (January 1998). "Questionnaire on the perceptions of patients about total knee replacement". The Journal of Bone and Joint Surgery. British Volume. 80 (1): 63–9. doi:10.1302/0301-620X.80B1.7859. PMID 9460955.
Xie F, Ye H, Zhang Y, Liu X, Lei T, Li SC (May 2011). "Extension from inpatients to outpatients: validity and reliability of the Oxford Knee Score in measuring health outcomes in patients with knee osteoarthritis". International Journal of Rheumatic Diseases. 14 (2): 206–10. doi:10.1111/j.1756-185X.2010.01580.x. PMID 21518321. S2CID 6498018.
McKenna SP, Hunt SM (March 1994). "A measure of family disruption for use in chickenpox and other childhood illnesses". Social Science & Medicine. 38 (5): 725–31. doi:10.1016/0277-9536(94)90463-4. PMID 8171351.
Mast TC, DeMuro-Mercon C, Kelly CM, Floyd LE, Walter EB (February 2009). "The impact of rotavirus gastroenteritis on the family". BMC Pediatrics. 9: 11. doi:10.1186/1471-2431-9-11. PMC 2649068. PMID 19200366.
Bächinger D, Röösli C, Ditzen B, Huber AM (October 2016). "Development and validation of the Zurich chronic middle ear inventory (ZCMEI-21): an electronic questionnaire for assessing quality of life in patients with chronic otitis media". European Archives of Oto-Rhino-Laryngology. 273 (10): 3073–81. doi:10.1007/s00405-016-3915-7. PMID 26869474. S2CID 10107433.
Chatzimichalis, Michail; Epprecht, Lorenz; Weder, Stefan; Shaul, Chanan; Engle Folchert, Kristi J.; Machala, Maria C.; Goosmann, Madeline M.; Naville, Marc; Zhu, Angela; Röösli, Christof; Lee, Daniel J.; Cass, Stephen P.; Briggs, Robert; Huber, Alexander M.; Bächinger, David (2019). "English translation and validation of the Zurich chronic middle ear inventory (ZCMEI‐21‐E) assessing quality of life in chronic otitis media: A prospective international multicentre study". Clinical Otolaryngology. 44 (3): 254–262. doi:10.1111/coa.13275. hdl:11343/285278. PMID 30588758. S2CID 58610511.
Ralli, Massimo; Quaranta, Nicola; Canale, Andrea; Röösli, Christof; Milella, Claudia; De Robertis, Valentina; De Soccio, Giulia; Greco, Antonio; Ralli, Giovanni; Albera, Roberto; De Vincentiis, Marco; Huber, Alexander M.; Bächinger, David (2019). "Cross-cultural Adaption and Validation of the Zurich Chronic Middle Ear Inventory Translated into Italian (ZCMEI-21-It)—a Prospective Multicenter Study" (PDF). Otology & Neurotology. 40 (3): 351–358. doi:10.1097/MAO.0000000000002131. PMID 30741898. S2CID 73436408.
Bächinger, David; Takagi, Daiki; Yamada, Hiroyuki; Teraoka, Masato; Okada, Masahiro; Hyodo, Jun; Röösli, Christof; Huber, Alexander M.; Hato, Naohito (2019). "Japanese translation, cross-cultural adaption and multicentre validation of the Zurich chronic middle ear inventory (ZCMEI-21-Jap)". Auris Nasus Larynx. 46 (1): 18–23. doi:10.1016/j.anl.2018.05.008. PMID 29871811. S2CID 46949869.
Weldam SW, Schuurmans MJ, Liu R, Lammers JW (May 2013). "Evaluation of Quality of Life instruments for use in COPD care and research: a systematic review". International Journal of Nursing Studies. 50 (5): 688–707. doi:10.1016/j.ijnurstu.2012.07.017. PMID 22921317.
López-Campos JL (2009). "[Importance of fatigue, sleep quality and mood in patients with chronic obstructive pulmonary disease and the need for measurement instruments]" [Importance of fatigue, sleep quality and mood in patients with chronic obstructive pulmonary disease and the need for measurement instruments]. Archivos de Bronconeumologia (in Spanish). 45 (Suppl 5): 2–6. doi:10.1016/S0300-2896(09)72948-5. PMID 20116755.
Amir M, Lewin-Epstein N, Becker G, Buskila D (October 2002). "Psychometric properties of the SF-12 (Hebrew version) in a primary care population in Israel". Medical Care. 40 (10): 918–28. doi:10.1097/00005650-200210000-00009. PMID 12395025. S2CID 25950087.
McKenna SP, Hunt SM (October 1992). "A new measure of quality of life in depression: testing the reliability and construct validity of the QLDS". Health Policy. 22 (3): 321–30. doi:10.1016/0168-8510(92)90005-V. PMID 10122731.
Baca Baldomero E, Cervera Enguix S (2003). "[Quality of life, in depressed patients in Primary Health Care setting. Effectiveness and safety of venlafaxine extended release]". Actas Españolas de Psiquiatría. 31 (6): 331–8. PMID 14639509.
Detke MJ, Lu Y, Goldstein DJ, McNamara RK, Demitrack MA (2002). "Duloxetine 60 mg once daily dosing versus placebo in the acute treatment of major depression". Journal of Psychiatric Research. 36 (6): 383–90. doi:10.1016/S0022-3956(02)00060-2. PMID 12393307.
Hudson JI, Perahia DG, Gilaberte I, Wang F, Watkin JG, Detke MJ (August 2007). "Duloxetine in the treatment of major depressive disorder: an open-label study". BMC Psychiatry. 7: 43. doi:10.1186/1471-244X-7-43. PMC 2018694. PMID 17725843.
Kornstein SG, Wohlreich MM, Mallinckrodt CH, Watkin JG, Stewart DE (May 2006). "Duloxetine efficacy for major depressive disorder in male vs. female patients: data from 7 randomized, double-blind, placebo-controlled trials". The Journal of Clinical Psychiatry. 67 (5): 761–70. doi:10.4088/JCP.v67n0510. PMID 16841626.
Dunner DL, Kwong WJ, Houser TL, Richard NE, Donahue RM, Khan ZM (February 2001). "Improved Health-Related Quality of Life and Reduced Productivity Loss After Treatment With Bupropion Sustained Release: A Study in Patients With Major Depression". Primary Care Companion to the Journal of Clinical Psychiatry. 3 (1): 10–16. doi:10.4088/PCC.v03n0103. PMC 181153. PMID 15014623.
Vickrey BG (1993). "A procedure for developing a quality-of-life measure for epilepsy surgery patients". Epilepsia. 34 (Suppl. 4): S22-7. doi:10.1111/j.1528-1157.1993.tb05912.x. PMID 8348900. S2CID 33216251.
Selai CE, Elstner K, Trimble MR (January 2000). "Quality of life pre and post epilepsy surgery". Epilepsy Research. 38 (1): 67–74. doi:10.1016/s0920-1211(99)00075-3. PMID 10604607. S2CID 12205701.
da Conceição PO, Nascimento PP, Mazetto L, Alonso NB, Yacubian EM, de Araujo Filho GM (May 2013). "Are psychiatric disorders exclusion criteria for video-EEG monitoring and epilepsy surgery in patients with mesial temporal sclerosis?". Epilepsy & Behavior. 27 (2): 310–4. doi:10.1016/j.yebeh.2013.02.014. PMID 23523814. S2CID 566487.
Monteiro E, Osório F, Veriano A, Molina RS, Funayama SS, Terra VC, et al. (July 2012). "Validation of the Subjective Handicap of Epilepsy (SHE) in Brazilian patients with epilepsy". Epilepsy & Behavior. 24 (3): 345–51. doi:10.1016/j.yebeh.2012.04.129. PMID 22658433. S2CID 27975316.
Mangione CM, Lee PP, Gutierrez PR, Spritzer K, Berry S, Hays RD (July 2001). "Development of the 25-item National Eye Institute Visual Function Questionnaire". Archives of Ophthalmology. 119 (7): 1050–8. doi:10.1001/archopht.119.7.1050. PMID 11448327.
Orr P, Rentz AM, Margolis MK, Revicki DA, Dolan CM, Colman S, et al. (May 2011). "Validation of the National Eye Institute Visual Function Questionnaire-25 (NEI VFQ-25) in age-related macular degeneration". Investigative Ophthalmology & Visual Science. 52 (6): 3354–9. doi:10.1167/iovs.10-5645. PMID 21282568.
Kirwan C, Lanigan B, O'Keefe M (2012). "Vision-related quality of life assessment using the NEI-VFQ-25 in adolescents and young adults with a history of congenital cataract". Journal of Pediatric Ophthalmology and Strabismus. 49 (1): 26–31. doi:10.3928/01913913-20110517-02. PMID 21598855.
Naik RK, Gries KS, Rentz AM, Kowalski JW, Revicki DA (December 2013). "Psychometric evaluation of the National Eye Institute Visual Function Questionnaire and Visual Function Questionnaire Utility Index in patients with non-infectious intermediate and posterior uveitis". Quality of Life Research. 22 (10): 2801–8. doi:10.1007/s11136-013-0412-y. PMID 23645458. S2CID 50961.
Meads DM, Doward LC, McKenna SP, Fisk J, Twiss J, Eckert B (October 2009). "The development and validation of the Unidimensional Fatigue Impact Scale (U-FIS)". Multiple Sclerosis. 15 (10): 1228–38. doi:10.1177/1352458509106714. PMID 19556314. S2CID 23273125.
Elbers RG, Rietberg MB, van Wegen EE, Verhoef J, Kramer SF, Terwee CB, Kwakkel G (August 2012). "Self-report fatigue questionnaires in multiple sclerosis, Parkinson's disease and stroke: a systematic review of measurement properties". Quality of Life Research. 21 (6): 925–44. doi:10.1007/s11136-011-0009-2. PMC 3389599. PMID 22012025.
Richardson J, Iezzi A, Khan MA, Maxwell A (2014). "Validity and reliability of the Assessment of Quality of Life (AQoL)-8D multi-attribute utility instrument". The Patient. 7 (1): 85–96. doi:10.1007/s40271-013-0036-x. PMC 3929769. PMID 24271592.
Maxwell A, Özmen M, Iezzi A, Richardson J (December 2016). "Deriving population norms for the AQoL-6D and AQoL-8D multi-attribute utility instruments from web-based data". Quality of Life Research. 25 (12): 3209–3219. doi:10.1007/s11136-016-1337-z. PMID 27344318. S2CID 2153470.
Kaplan RM, Patterson TL, Kerner DN, Atkinson JH, Heaton RK, Grant I (August 1997). "The Quality of Well-Being scale in asymptomatic HIV-infected patients. HNRC Group. HIV Neural Behavioral Research Center". Quality of Life Research. 6 (6): 507–14. doi:10.1023/A:1018456031659. PMID 9330551. S2CID 1253643.
Hughes TE, Kaplan RM, Coons SJ, Draugalis JR, Johnson JA, Patterson TL (1997). "Construct validities of the Quality of Well-Being Scale and the MOS-HIV-34 Health Survey for HIV-infected patients". Medical Decision Making. 17 (4): 439–46. CiteSeerX 10.1.1.1004.6037. doi:10.1177/0272989X9701700409. PMID 9343802. S2CID 22869619.
Frosch DL, Kaplan RM, Ganiats TG, Groessl EJ, Sieber WJ, Weisman MH (February 2004). "Validity of self-administered quality of well-being scale in musculoskeletal disease". Arthritis and Rheumatism. 51 (1): 28–33. doi:10.1002/art.20071. PMID 14872452.
Brooks R (July 1996). "EuroQol: the current state of play". Health Policy. 37 (1): 53–72. doi:10.1016/0168-8510(96)00822-6. PMID 10158943.
Desroziers K, Aballéa S, Maman K, Nazir J, Odeyemi I, Hakimi Z (November 2013). "Estimating EQ-5D and OAB-5D health state utilities for patients with overactive bladder". Health and Quality of Life Outcomes. 11 (1): 200. doi:10.1186/1477-7525-11-200. PMC 3842710. PMID 24246044.
Bouwmans C, van der Kolk A, Oppe M, Schawo S, Stolk E, van Agthoven M, et al. (December 2014). "Validity and responsiveness of the EQ-5D and the KIDSCREEN-10 in children with ADHD". The European Journal of Health Economics. 15 (9): 967–77. doi:10.1007/s10198-013-0540-x. PMID 24233919. S2CID 20429564.
Parthan A, Kruse M, Agodoa I, Silverman S, Orwoll E (February 2014). "Denosumab: a cost-effective alternative for older men with osteoporosis from a Swedish payer perspective". Bone. 59: 105–13. doi:10.1016/j.bone.2013.11.002. PMID 24231131.
Hunt SM, McKenna SP, McEwen J, Williams J, Papp E (May 1981). "The Nottingham Health Profile: subjective health status and medical consultations". Social Science & Medicine, Part A. 15 (3 Pt 1): 221–9. doi:10.1016/0271-7123(81)90005-5. PMID 6973203.
Ebrahim S, Barer D, Nouri F (June 1986). "Use of the Nottingham Health Profile with patients after a stroke". Journal of Epidemiology and Community Health. 40 (2): 166–9. doi:10.1136/jech.40.2.166. PMC 1052513. PMID 3746178.
Hunt SM, McEwen J, McKenna SP (April 1985). "Measuring health status: a new tool for clinicians and epidemiologists". The Journal of the Royal College of General Practitioners. 35 (273): 185–8. PMC 1960139. PMID 3989783.
Johansen KL, Finkelstein FO, Revicki DA, Evans C, Wan S, Gitlin M, Agodoa IL (June 2012). "Systematic review of the impact of erythropoiesis-stimulating agents on fatigue in dialysis patients". Nephrology, Dialysis, Transplantation. 27 (6): 2418–25. doi:10.1093/ndt/gfr697. PMID 22187314.
Behan LA, Rogers B, Hannon MJ, O'Kelly P, Tormey W, Smith D, et al. (October 2011). "Optimizing glucocorticoid replacement therapy in severely adrenocorticotropin-deficient hypopituitary male patients". Clinical Endocrinology. 75 (4): 505–13. doi:10.1111/j.1365-2265.2011.04074.x. PMID 21521342. S2CID 205286522.
Aydemir G, Tezer MS, Borman P, Bodur H, Unal A (June 2006). "Treatment of tinnitus with transcutaneous electrical nerve stimulation improves patients' quality of life". The Journal of Laryngology and Otology. 120 (6): 442–5. doi:10.1017/S0022215106000910. PMID 16556347. S2CID 43430574.
Ware JE, Sherbourne CD (June 1992). "The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection". Medical Care. 30 (6): 473–83. doi:10.1097/00005650-199206000-00002. PMID 1593914. S2CID 44458175.
Abulhasan M, Elshazly TA, Eida M, Albadry A (September 2013). "Giardia intestinalis in patients with nonulcer dyspepsia". Arab Journal of Gastroenterology. 14 (3): 126–9. doi:10.1016/j.ajg.2013.08.004. PMID 24206742.
Cuevas BT, Hughes DC, Parma DL, Treviño-Whitaker RA, Ghosh S, Li R, Ramirez AG (April 2014). "Motivation, exercise, and stress in breast cancer survivors". Supportive Care in Cancer. 22 (4): 911–7. doi:10.1007/s00520-013-2038-6. PMC 3943705. PMID 24249424.
Avidan A, Hays RD, Diaz N, Bordelon Y, Thompson AW, Vassar SD, Vickrey BG (2013). "Associations of sleep disturbance symptoms with health-related quality of life in Parkinson's disease". The Journal of Neuropsychiatry and Clinical Neurosciences. 25 (4): 319–26. doi:10.1176/appi.neuropsych.12070175. PMC 3960993. PMID 24247858.
Gilson BS, Gilson JS, Bergner M, Bobbit RA, Kressel S, Pollard WE, Vesselago M (December 1975). "The sickness impact profile. Development of an outcome measure of health care". American Journal of Public Health. 65 (12): 1304–10. doi:10.2105/AJPH.65.12.1304. PMC 1776251. PMID 1200192.
van Straten A, de Haan RJ, Limburg M, Schuling J, Bossuyt PM, van den Bos GA (November 1997). "A stroke-adapted 30-item version of the Sickness Impact Profile to assess quality of life (SA-SIP30)". Stroke. 28 (11): 2155–61. doi:10.1161/01.STR.28.11.2155. PMID 9368557.
Hulsebos RG, Beltman FW, dos Reis Miranda D, Spangenberg JF (1991). "Measuring quality of life with the sickness impact profile: a pilot study". Intensive Care Medicine. 17 (5): 285–8. doi:10.1007/BF01713939. PMID 1939874. S2CID 6394744.
Horsman J, Furlong W, Feeny D, Torrance G (October 2003). "The Health Utilities Index (HUI): concepts, measurement properties and applications". Health and Quality of Life Outcomes. 1: 54. doi:10.1186/1477-7525-1-54. PMC 293474. PMID 14613568.
Furlong WJ, Feeny DH, Torrance GW, Barr RD (July 2001). "The Health Utilities Index (HUI) system for assessing health-related quality of life in clinical studies". Annals of Medicine. 33 (5): 375–84. doi:10.3109/07853890109002092. PMID 11491197. S2CID 37589566.
Davis EM, Lynd LD, Grubisic M, Kopec JA, Sayre EC, Cibere J, et al. (December 2013). "Responsiveness of health state utility values in knee osteoarthritis". The Journal of Rheumatology. 40 (12): 2075–82. doi:10.3899/jrheum.130176. PMID 24187098. S2CID 35129983.
Harvie HS, Shea JA, Andy UU, Propert K, Schwartz JS, Arya LA (January 2014). "Validity of utility measures for women with urge, stress, and mixed urinary incontinence". American Journal of Obstetrics and Gynecology. 210 (1): 85.e1–6. doi:10.1016/j.ajog.2013.09.025. PMID 24055585.
Ebrahim S, Parshuram C (March 2015). "Comparison of utility scores from the Visual Analog Scale and Health Utilities Index 3 in children following pediatric intensive care unit admission". Journal of Child Health Care. 19 (1): 53–62. doi:10.1177/1367493513496909. PMID 23939724. S2CID 23422052.
Meads DM, McKenna SP, Bonney MA, Bloch MT (2009). "Further validation and responsiveness assessment of the Herpes Outbreak Impact Questionnaire and Herpes Symptom Checklist". Value in Health. 12 (2): 397–400. doi:10.1111/j.1524-4733.2008.00450.x. PMID 18783390.
Doward LC, McKenna SP, Meads DM, Kahler K, Frech F (2009). "The development of the Herpes Symptom Checklist and the Herpes Outbreak Impact Questionnaire". Value in Health. 12 (1): 139–45. doi:10.1111/j.1524-4733.2008.00424.x. PMID 18647252.
Doward LC, McKenna SP, Kohlmann T, Niero M, Patrick D, Spencer B, Thorsen H (February 1998). "The international development of the RGHQoL: a quality of life measure for recurrent genital herpes". Quality of Life Research. 7 (2): 143–53. doi:10.1023/A:1008857426633. PMID 9523496. S2CID 19058639.
Bartlett BL, Tyring SK, Fife K, Gnann JW, Hadala JT, Kianifard F, Berber E (October 2008). "Famciclovir treatment options for patients with frequent outbreaks of recurrent genital herpes: the RELIEF trial". Journal of Clinical Virology. 43 (2): 190–5. doi:10.1016/j.jcv.2008.06.004. PMID 18621575.
Patel R, Tyring S, Strand A, Price MJ, Grant DM (December 1999). "Impact of suppressive antiviral therapy on the health related quality of life of patients with recurrent genital herpes infection". Sexually Transmitted Infections. 75 (6): 398–402. doi:10.1136/sti.75.6.398. PMC 1758256. PMID 10754944.
Spencer B, Leplège A, Ecosse E (June 1999). "Recurrent genital herpes and quality of life in France". Quality of Life Research. 8 (4): 365–71. doi:10.1023/A:1008904227182. PMID 10472169. S2CID 24573908.
Patel R, Boselli F, Cairo I, Barnett G, Price M, Wulf HC (October 2001). "Patients' perspectives on the burden of recurrent genital herpes". International Journal of STD & AIDS. 12 (10): 640–5. doi:10.1258/0956462011923859. PMID 11564330. S2CID 32358251.
Wirén L, Whalley D, McKenna S, Wilhelmsen L (February 2000). "Application of a disease-specific, quality-of-life measure (QoL-AGHDA) in growth hormone-deficient adults and a random population sample in Sweden: validation of the measure by rasch analysis". Clinical Endocrinology. 52 (2): 143–52. doi:10.1046/j.1365-2265.2000.00899.x. PMID 10671940. S2CID 11256536.
Moock J, Friedrich N, Völzke H, Spielhagen C, Nauck M, Koltowska-Häggström M, et al. (October 2011). "Prediction of improvement in quality of life (QoL-AGHDA) in adults with growth hormone deficiency by normative reference limits: data of the German KIMS cohort". Growth Hormone & IGF Research. 21 (5): 272–8. doi:10.1016/j.ghir.2011.07.005. PMID 21865066.
Gilet H, Chachuat A, Viala-Danten M, Auzière S, Koltowska-Häggström M (2010). "Application of the disease-specific Quality of Life Assessment of Growth Hormone Deficiency in Adults (QoL-AGHDA) questionnaire in a general population: results from a French panel study". Value in Health. 13 (4): 495–500. doi:10.1111/j.1524-4733.2009.00689.x. PMID 20102556.
Badia X, Lucas A, Sanmartí A, Roset M, Ulied A (December 1998). "One-year follow-up of quality of life in adults with untreated growth hormone deficiency". Clinical Endocrinology. 49 (6): 765–71. doi:10.1046/j.1365-2265.1998.00634.x. PMID 10209564. S2CID 31044474.
Mukherjee A, Tolhurst-Cleaver S, Ryder WD, Smethurst L, Shalet SM (March 2005). "The characteristics of quality of life impairment in adult growth hormone (GH)-deficient survivors of cancer and their response to GH replacement therapy". The Journal of Clinical Endocrinology and Metabolism. 90 (3): 1542–9. doi:10.1210/jc.2004-0832. PMID 15613427.
Gutiérrez LP, Kołtowska-Häggström M, Jönsson PJ, Mattsson AF, Svensson D, Westberg B, Luger A (January 2008). "Registries as a tool in evidence-based medicine: example of KIMS (Pfizer International Metabolic Database)". Pharmacoepidemiology and Drug Safety. 17 (1): 90–102. doi:10.1002/pds.1510. PMID 17957812. S2CID 31206757.
Hays RD, Kallich JD, Mapes DL, Coons SJ, Carter WB (October 1994). "Development of the kidney disease quality of life (KDQOL) instrument". Quality of Life Research. 3 (5): 329–38. doi:10.1007/BF00451725. PMID 7841967. S2CID 41098376.
Fan WF, Zhang Q, Luo LH, Niu JY, Gu Y (2013). "Study on the clinical significance and related factors of thirst and xerostomia in maintenance hemodialysis patients". Kidney & Blood Pressure Research. 37 (4–5): 464–74. doi:10.1159/000355717. PMID 24247643. S2CID 207708239.
Cortés-Sanabria L, Paredes-Ceseña CA, Herrera-Llamas RM, Cruz-Bueno Y, Soto-Molina H, Pazarín L, et al. (November 2013). "Comparison of cost-utility between automated peritoneal dialysis and continuous ambulatory peritoneal dialysis". Archives of Medical Research. 44 (8): 655–61. doi:10.1016/j.arcmed.2013.10.017. PMID 24211750.
Fidan F, Alkan BM, Tosun A, Altunoğlu A, Ardıçoğlu Ö (February 2016). "Quality of life and correlation with musculoskeletal problems, hand disability and depression in patients with hemodialysis". International Journal of Rheumatic Diseases. 19 (2): 159–66. doi:10.1111/1756-185X.12171. PMID 24176031. S2CID 27610428.
Patrick DL, Hurst BC, Hughes J (2000). "Further development and testing of the migraine-specific quality of life (MSQOL) measure". Headache. 40 (7): 550–60. doi:10.1046/j.1526-4610.2000.00086.x. PMID 10940093. S2CID 23808987.
Garcia-Monco JC, Foncea N, Bilbao A, Ruiz de Velasco I, Gomez-Beldarrain M (August 2007). "Impact of preventive therapy with nadolol and topiramate on the quality of life of migraine patients". Cephalalgia. 27 (8): 920–8. doi:10.1111/j.1468-2982.2007.01367.x. PMID 17645757. S2CID 9406164.
Spigt M, Weerkamp N, Troost J, van Schayck CP, Knottnerus JA (August 2012). "A randomized trial on the effects of regular water intake in patients with recurrent headaches". Family Practice. 29 (4): 370–5. doi:10.1093/fampra/cmr112. PMID 22113647.
Mérelle SY, Sorbi MJ, van Doornen LJ, Passchier J (February 2008). "Migraine patients as trainers of their fellow patients in non-pharmacological preventive attack management: short-term effects of a randomized controlled trial". Cephalalgia. 28 (2): 127–38. doi:10.1111/j.1468-2982.2007.01472.x. PMID 18197883. S2CID 44246726.
Doward LC, McKenna SP, Meads DM, Twiss J, Eckert BJ (September 2009). "The development of patient-reported outcome indices for multiple sclerosis (PRIMUS)". Multiple Sclerosis. 15 (9): 1092–102. doi:10.1177/1352458509106513. PMID 19556315. S2CID 7459469.
Mäurer M, Ortler S, Baier M, Meergans M, Scherer P, Hofmann W, Tracik F (April 2013). "Randomised multicentre trial on safety and efficacy of rivastigmine in cognitively impaired multiple sclerosis patients". Multiple Sclerosis. 19 (5): 631–8. doi:10.1177/1352458512463481. PMID 23069874. S2CID 6838286.
Keenan AM, McKenna SP, Doward LC, Conaghan PG, Emery P, Tennant A (June 2008). "Development and validation of a needs-based quality of life instrument for osteoarthritis". Arthritis and Rheumatism. 59 (6): 841–8. doi:10.1002/art.23714. PMID 18512719.
Abbas M, Schwartz ME, Smith FJ, McLean WH, Hull PR (2014). "PCQoL: A Quality of Life Assessment Measure for Pachyonychia Congenita". Journal of Cutaneous Medicine and Surgery. 19 (1): 57–65. doi:10.2310/7750.2014.14017. PMID 25775665. S2CID 221801367.
de Jong Z, van der Heijde D, McKenna SP, Whalley D (August 1997). "The reliability and construct validity of the RAQoL: a rheumatoid arthritis-specific quality of life instrument". British Journal of Rheumatology. 36 (8): 878–83. doi:10.1093/rheumatology/36.8.878. PMID 9291857. S2CID 20190839.
Adams J, Chapman J, Bradley S, Ryan SJ (March 2013). "Literacy levels required to complete routinely used patient-reported outcome measures in rheumatology". Rheumatology. 52 (3): 460–4. doi:10.1093/rheumatology/kes296. PMID 23118412.
Dougados M, Kissel K, Sheeran T, Tak PP, Conaghan PG, Mola EM, et al. (January 2013). "Adding tocilizumab or switching to tocilizumab monotherapy in methotrexate inadequate responders: 24-week symptomatic and structural results of a 2-year randomised controlled strategy trial in rheumatoid arthritis (ACT-RAY)". Annals of the Rheumatic Diseases. 72 (1): 43–50. doi:10.1136/annrheumdis-2011-201282. PMC 3551223. PMID 22562983.
Quinn MA, Conaghan PG, O'Connor PJ, Karim Z, Greenstein A, Brown A, et al. (January 2005). "Very early treatment with infliximab in addition to methotrexate in early, poor-prognosis rheumatoid arthritis reduces magnetic resonance imaging evidence of synovitis and damage, with sustained benefit after infliximab withdrawal: results from a twelve-month randomized, double-blind, placebo-controlled trial". Arthritis and Rheumatism. 52 (1): 27–35. doi:10.1002/art.20712. PMID 15641102.
Bejarano V, Conaghan PG, Quinn MA, Saleem B, Emery P (October 2010). "Benefits 8 years after a remission induction regime with an infliximab and methotrexate combination in early rheumatoid arthritis". Rheumatology. 49 (10): 1971–4. doi:10.1093/rheumatology/keq194. PMID 20595536.
McKenna SP, Ratcliffe J, Meads DM, Brazier JE (August 2008). "Development and validation of a preference based measure derived from the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) for use in cost utility analyses". Health and Quality of Life Outcomes. 6: 65. doi:10.1186/1477-7525-6-65. PMC 2546377. PMID 18718016.
McKenna SP, Doughty N, Meads DM, Doward LC, Pepke-Zaba J (February 2006). "The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR): a measure of health-related quality of life and quality of life for patients with pulmonary hypertension". Quality of Life Research. 15 (1): 103–15. doi:10.1007/s11136-005-3513-4. PMID 16411035. S2CID 23830883.
Channick RN, Voswinckel R, Rubin LJ (2012). "Inhaled treprostinil: a therapeutic review". Drug Design, Development and Therapy. 6: 19–28. doi:10.2147/DDDT.S19281. PMC 3267519. PMID 22291467.
Chen H, Rosenzweig EB, Gotzkowsky SK, Arneson C, Nelsen AC, Bourge RC (March 2013). "Treatment satisfaction is associated with improved quality of life in patients treated with inhaled treprostinil for pulmonary arterial hypertension". Health and Quality of Life Outcomes. 11: 31. doi:10.1186/1477-7525-11-31. PMC 3610124. PMID 23496856.
Tay EL, Papaphylactou M, Diller GP, Alonso-Gonzalez R, Inuzuka R, Giannakoulas G, et al. (June 2011). "Quality of life and functional capacity can be improved in patients with Eisenmenger syndrome with oral sildenafil therapy". International Journal of Cardiology. 149 (3): 372–6. doi:10.1016/j.ijcard.2010.02.020. PMID 20304507.
Suntharalingam J, Treacy CM, Doughty NJ, Goldsmith K, Soon E, Toshner MR, et al. (August 2008). "Long-term use of sildenafil in inoperable chronic thromboembolic pulmonary hypertension". Chest. 134 (2): 229–236. doi:10.1378/chest.07-2681. PMID 18263674.
McKenna SP, Lebwohl M, Kahler KN (June 2005). "Development of the US PSORIQoL: a psoriasis-specific measure of quality of life". International Journal of Dermatology. 44 (6): 462–9. doi:10.1111/j.1365-4632.2005.01941.x. PMID 15941432. S2CID 22163460.
McKenna SP, Cook SA, Whalley D, Doward LC, Richards HL, Griffiths CE, Van Assche D (August 2003). "Development of the PSORIQoL, a psoriasis-specific measure of quality of life designed for use in clinical practice and trials". The British Journal of Dermatology. 149 (2): 323–31. doi:10.1046/j.1365-2133.2003.05492.x. PMID 12932239. S2CID 26091210.
Brodszky V, Péntek M, Bálint PV, Géher P, Hajdu O, Hodinka L, et al. (August 2010). "Comparison of the Psoriatic Arthritis Quality of Life (PsAQoL) questionnaire, the functional status (HAQ) and utility (EQ-5D) measures in psoriatic arthritis: results from a cross-sectional survey". Scandinavian Journal of Rheumatology. 39 (4): 303–9. doi:10.3109/03009740903468982. PMID 20166848. S2CID 26425942.
McKenna SP, Doward LC, Whalley D, Tennant A, Emery P, Veale DJ (February 2004). "Development of the PsAQoL: a quality of life instrument specific to psoriatic arthritis". Annals of the Rheumatic Diseases. 63 (2): 162–9. doi:10.1136/ard.2003.006296. PMC 1754880. PMID 14722205.
Marzo-Ortega H, McGonagle D, Rhodes LA, Tan AL, Conaghan PG, O'Connor P, et al. (June 2007). "Efficacy of infliximab on MRI-determined bone oedema in psoriatic arthritis". Annals of the Rheumatic Diseases. 66 (6): 778–81. doi:10.1136/ard.2006.063818. PMC 1954680. PMID 17185324.
Brown BC, McKenna SP, Solomon M, Wilburn J, McGrouther DA, Bayat A (May 2010). "The patient-reported impact of scars measure: development and validation". Plastic and Reconstructive Surgery. 125 (5): 1439–49. doi:10.1097/PRS.0b013e3181d4fd89. PMID 20440163.
Doward LC, McKenna SP, Whalley D, Tennant A, Griffiths B, Emery P, Veale DJ (February 2009). "The development of the L-QoL: a quality-of-life instrument specific to systemic lupus erythematosus". Annals of the Rheumatic Diseases. 68 (2): 196–200. doi:10.1136/ard.2007.086009. PMID 18385276. S2CID 23886698.
Castelino M, Abbott J, McElhone K, Teh LS (April 2013). "Comparison of the psychometric properties of health-related quality of life measures used in adults with systemic lupus erythematosus: a review of the literature". Rheumatology. 52 (4): 684–96. doi:10.1093/rheumatology/kes370. PMID 23264550.
Yazdany J (November 2011). "Health-related quality of life measurement in adult systemic lupus erythematosus: Lupus Quality of Life (LupusQoL), Systemic Lupus Erythematosus-Specific Quality of Life Questionnaire (SLEQOL), and Systemic Lupus Erythematosus Quality of Life Questionnaire (L-QoL)". Arthritis Care & Research. 63 Suppl 11 (11): S413-9. doi:10.1002/acr.20636. PMC 3437754. PMID 22588761.

ncbi.nlm.nih.gov

Doward LC, Spoorenberg A, Cook SA, Whalley D, Helliwell PS, Kay LJ, et al. (January 2003). "Development of the ASQoL: a quality of life instrument specific to ankylosing spondylitis". Annals of the Rheumatic Diseases. 62 (1): 20–6. doi:10.1136/ard.62.1.20. PMC 1754293. PMID 12480664.
van der Heijde DM, Revicki DA, Gooch KL, Wong RL, Kupper H, Harnam N, et al. (2009). "Physical function, disease activity, and health-related quality-of-life outcomes after 3 years of adalimumab treatment in patients with ankylosing spondylitis". Arthritis Research & Therapy. 11 (4): R124. doi:10.1186/ar2790. PMC 2745808. PMID 19686597.
Marzo-Ortega H, McGonagle D, Haugeberg G, Green MJ, Stewart SP, Emery P (October 2003). "Bone mineral density improvement in spondyloarthropathy after treatment with etanercept". Annals of the Rheumatic Diseases. 62 (10): 1020–1. doi:10.1136/ard.62.10.1020. PMC 1754338. PMID 12972490.
Juniper EF, Guyatt GH, Epstein RS, Ferrie PJ, Jaeschke R, Hiller TK (February 1992). "Evaluation of impairment of health related quality of life in asthma: development of a questionnaire for use in clinical trials". Thorax. 47 (2): 76–83. doi:10.1136/thx.47.2.76. PMC 463574. PMID 1549827.
Cano Fuentes G, Dastis Bendala C, Morales Barroso I, Manzanares Torné ML, Fernández Gregorio A, Martín Romana L (March 2014). "[A randomised clinical trial to evaluate the effectiveness of an educational intervention developed for adult asthmatics in a primary care centre]". Atencion Primaria. 46 (3): 117–39. doi:10.1016/j.aprim.2013.04.005. PMC 6983582. PMID 24176681.
Santino, Thayla A.; Chaves, Gabriela Ss; Freitas, Diana A.; Fregonezi, Guilherme Af; Mendonça, Karla Mpp (25 March 2020). "Breathing exercises for adults with asthma". The Cochrane Database of Systematic Reviews. 2020 (3): CD001277. doi:10.1002/14651858.CD001277.pub4. ISSN 1469-493X. PMC 7096190. PMID 32212422.
Mast TC, DeMuro-Mercon C, Kelly CM, Floyd LE, Walter EB (February 2009). "The impact of rotavirus gastroenteritis on the family". BMC Pediatrics. 9: 11. doi:10.1186/1471-2431-9-11. PMC 2649068. PMID 19200366.
Hudson JI, Perahia DG, Gilaberte I, Wang F, Watkin JG, Detke MJ (August 2007). "Duloxetine in the treatment of major depressive disorder: an open-label study". BMC Psychiatry. 7: 43. doi:10.1186/1471-244X-7-43. PMC 2018694. PMID 17725843.
Dunner DL, Kwong WJ, Houser TL, Richard NE, Donahue RM, Khan ZM (February 2001). "Improved Health-Related Quality of Life and Reduced Productivity Loss After Treatment With Bupropion Sustained Release: A Study in Patients With Major Depression". Primary Care Companion to the Journal of Clinical Psychiatry. 3 (1): 10–16. doi:10.4088/PCC.v03n0103. PMC 181153. PMID 15014623.
Elbers RG, Rietberg MB, van Wegen EE, Verhoef J, Kramer SF, Terwee CB, Kwakkel G (August 2012). "Self-report fatigue questionnaires in multiple sclerosis, Parkinson's disease and stroke: a systematic review of measurement properties". Quality of Life Research. 21 (6): 925–44. doi:10.1007/s11136-011-0009-2. PMC 3389599. PMID 22012025.
Richardson J, Iezzi A, Khan MA, Maxwell A (2014). "Validity and reliability of the Assessment of Quality of Life (AQoL)-8D multi-attribute utility instrument". The Patient. 7 (1): 85–96. doi:10.1007/s40271-013-0036-x. PMC 3929769. PMID 24271592.
Desroziers K, Aballéa S, Maman K, Nazir J, Odeyemi I, Hakimi Z (November 2013). "Estimating EQ-5D and OAB-5D health state utilities for patients with overactive bladder". Health and Quality of Life Outcomes. 11 (1): 200. doi:10.1186/1477-7525-11-200. PMC 3842710. PMID 24246044.
Ebrahim S, Barer D, Nouri F (June 1986). "Use of the Nottingham Health Profile with patients after a stroke". Journal of Epidemiology and Community Health. 40 (2): 166–9. doi:10.1136/jech.40.2.166. PMC 1052513. PMID 3746178.
Hunt SM, McEwen J, McKenna SP (April 1985). "Measuring health status: a new tool for clinicians and epidemiologists". The Journal of the Royal College of General Practitioners. 35 (273): 185–8. PMC 1960139. PMID 3989783.
Cuevas BT, Hughes DC, Parma DL, Treviño-Whitaker RA, Ghosh S, Li R, Ramirez AG (April 2014). "Motivation, exercise, and stress in breast cancer survivors". Supportive Care in Cancer. 22 (4): 911–7. doi:10.1007/s00520-013-2038-6. PMC 3943705. PMID 24249424.
Avidan A, Hays RD, Diaz N, Bordelon Y, Thompson AW, Vassar SD, Vickrey BG (2013). "Associations of sleep disturbance symptoms with health-related quality of life in Parkinson's disease". The Journal of Neuropsychiatry and Clinical Neurosciences. 25 (4): 319–26. doi:10.1176/appi.neuropsych.12070175. PMC 3960993. PMID 24247858.
Gilson BS, Gilson JS, Bergner M, Bobbit RA, Kressel S, Pollard WE, Vesselago M (December 1975). "The sickness impact profile. Development of an outcome measure of health care". American Journal of Public Health. 65 (12): 1304–10. doi:10.2105/AJPH.65.12.1304. PMC 1776251. PMID 1200192.
Horsman J, Furlong W, Feeny D, Torrance G (October 2003). "The Health Utilities Index (HUI): concepts, measurement properties and applications". Health and Quality of Life Outcomes. 1: 54. doi:10.1186/1477-7525-1-54. PMC 293474. PMID 14613568.
Patel R, Tyring S, Strand A, Price MJ, Grant DM (December 1999). "Impact of suppressive antiviral therapy on the health related quality of life of patients with recurrent genital herpes infection". Sexually Transmitted Infections. 75 (6): 398–402. doi:10.1136/sti.75.6.398. PMC 1758256. PMID 10754944.
Dougados M, Kissel K, Sheeran T, Tak PP, Conaghan PG, Mola EM, et al. (January 2013). "Adding tocilizumab or switching to tocilizumab monotherapy in methotrexate inadequate responders: 24-week symptomatic and structural results of a 2-year randomised controlled strategy trial in rheumatoid arthritis (ACT-RAY)". Annals of the Rheumatic Diseases. 72 (1): 43–50. doi:10.1136/annrheumdis-2011-201282. PMC 3551223. PMID 22562983.
McKenna SP, Ratcliffe J, Meads DM, Brazier JE (August 2008). "Development and validation of a preference based measure derived from the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) for use in cost utility analyses". Health and Quality of Life Outcomes. 6: 65. doi:10.1186/1477-7525-6-65. PMC 2546377. PMID 18718016.
Channick RN, Voswinckel R, Rubin LJ (2012). "Inhaled treprostinil: a therapeutic review". Drug Design, Development and Therapy. 6: 19–28. doi:10.2147/DDDT.S19281. PMC 3267519. PMID 22291467.
Chen H, Rosenzweig EB, Gotzkowsky SK, Arneson C, Nelsen AC, Bourge RC (March 2013). "Treatment satisfaction is associated with improved quality of life in patients treated with inhaled treprostinil for pulmonary arterial hypertension". Health and Quality of Life Outcomes. 11: 31. doi:10.1186/1477-7525-11-31. PMC 3610124. PMID 23496856.
McKenna SP, Doward LC, Whalley D, Tennant A, Emery P, Veale DJ (February 2004). "Development of the PsAQoL: a quality of life instrument specific to psoriatic arthritis". Annals of the Rheumatic Diseases. 63 (2): 162–9. doi:10.1136/ard.2003.006296. PMC 1754880. PMID 14722205.
Marzo-Ortega H, McGonagle D, Rhodes LA, Tan AL, Conaghan PG, O'Connor P, et al. (June 2007). "Efficacy of infliximab on MRI-determined bone oedema in psoriatic arthritis". Annals of the Rheumatic Diseases. 66 (6): 778–81. doi:10.1136/ard.2006.063818. PMC 1954680. PMID 17185324.
Yazdany J (November 2011). "Health-related quality of life measurement in adult systemic lupus erythematosus: Lupus Quality of Life (LupusQoL), Systemic Lupus Erythematosus-Specific Quality of Life Questionnaire (SLEQOL), and Systemic Lupus Erythematosus Quality of Life Questionnaire (L-QoL)". Arthritis Care & Research. 63 Suppl 11 (11): S413-9. doi:10.1002/acr.20636. PMC 3437754. PMID 22588761.

proqolid.org

"Euroqol EQ-5D (EQ-5D)". PROQOLID.org. Mapi Research Trust. Archived from the original on 31 January 2015. Retrieved 20 November 2013.

psu.edu

citeseerx.ist.psu.edu

Hughes TE, Kaplan RM, Coons SJ, Draugalis JR, Johnson JA, Patterson TL (1997). "Construct validities of the Quality of Well-Being Scale and the MOS-HIV-34 Health Survey for HIV-infected patients". Medical Decision Making. 17 (4): 439–46. CiteSeerX 10.1.1.1004.6037. doi:10.1177/0272989X9701700409. PMID 9343802. S2CID 22869619.

rand.org

"Epilepsy Surgery Inventory 55 Survey (ESI-55)". RAND.org. RAND Health. Retrieved 27 November 2013.
"36-Item Short Form Survey from the RAND Medical Outcomes Study". RAND.org. RAND. Retrieved 20 November 2013.

sagepub.com

knowledge.sagepub.com

Kattan M (2009). "Quality of Well-Being Scale". Encyclopedia of Medical Decision Making. SAGE Publications. pp. 938–940. doi:10.4135/9781412971980. ISBN 978-1-4129-7198-0.

semanticscholar.org

api.semanticscholar.org

Levy K, Lanctôt KL, Farber SB, Li A, Herrmann N (March 2012). "Does pharmacological treatment of neuropsychiatric symptoms in Alzheimer's disease relieve caregiver burden?". Drugs & Aging. 29 (3): 167–179. doi:10.2165/11599140-000000000-00000. PMID 22350526. S2CID 207301505.
Jitta DJ, DeJongste MJ, Kliphuis CM, Staal MJ (January 2011). "Multimorbidity, the predominant predictor of quality-of-life, following successful spinal cord stimulation for angina pectoris". Neuromodulation. 14 (1): 13–8, discussion 18–9. doi:10.1111/j.1525-1403.2010.00321.x. PMID 21992156. S2CID 35519046.
Kim MA, Ye YM, Park JW, Lee JH, Lee SK, Kim CW, et al. (2013). "A computerized asthma-specific quality of life: a novel tool for reflecting asthma control and predicting exacerbation". International Archives of Allergy and Immunology. 163 (1): 36–42. doi:10.1159/000356336. PMID 24247849. S2CID 37156455.
McKenna SP, Whalley D, Dewar AL, Erdman RA, Kohlmann T, Niero M, et al. (February 2005). "International development of the Parents' Index of Quality of Life in Atopic Dermatitis (PIQoL-AD)". Quality of Life Research. 14 (1): 231–41. doi:10.1007/s11136-004-4231-z. PMID 15789957. S2CID 21412583.
McKenna SP, Whalley D, de Prost Y, Staab D, Huels J, Paul CF, van Assche D (March 2006). "Treatment of paediatric atopic dermatitis with pimecrolimus (Elidel, SDZ ASM 981): impact on quality of life and health-related quality of life". Journal of the European Academy of Dermatology and Venereology. 20 (3): 248–54. doi:10.1111/j.1468-3083.2006.01383.x. PMID 16503881. S2CID 34465416.
Lambert J, Bostoen J, Geusens B, Bourgois J, Boone J, De Smedt D, Annemans L (January 2011). "A novel multidisciplinary educational programme for patients with chronic skin diseases: Ghent pilot project and first results". Archives of Dermatological Research. 303 (1): 57–63. doi:10.1007/s00403-010-1082-z. PMID 20842368. S2CID 20817434.
Bostoen J, Bracke S, De Keyser S, Lambert J (November 2012). "An educational programme for patients with psoriasis and atopic dermatitis: a prospective randomized controlled trial". The British Journal of Dermatology. 167 (5): 1025–31. doi:10.1111/j.1365-2133.2012.11113.x. PMID 22709422. S2CID 11139439.
Xie F, Ye H, Zhang Y, Liu X, Lei T, Li SC (May 2011). "Extension from inpatients to outpatients: validity and reliability of the Oxford Knee Score in measuring health outcomes in patients with knee osteoarthritis". International Journal of Rheumatic Diseases. 14 (2): 206–10. doi:10.1111/j.1756-185X.2010.01580.x. PMID 21518321. S2CID 6498018.
Bächinger D, Röösli C, Ditzen B, Huber AM (October 2016). "Development and validation of the Zurich chronic middle ear inventory (ZCMEI-21): an electronic questionnaire for assessing quality of life in patients with chronic otitis media". European Archives of Oto-Rhino-Laryngology. 273 (10): 3073–81. doi:10.1007/s00405-016-3915-7. PMID 26869474. S2CID 10107433.
Chatzimichalis, Michail; Epprecht, Lorenz; Weder, Stefan; Shaul, Chanan; Engle Folchert, Kristi J.; Machala, Maria C.; Goosmann, Madeline M.; Naville, Marc; Zhu, Angela; Röösli, Christof; Lee, Daniel J.; Cass, Stephen P.; Briggs, Robert; Huber, Alexander M.; Bächinger, David (2019). "English translation and validation of the Zurich chronic middle ear inventory (ZCMEI‐21‐E) assessing quality of life in chronic otitis media: A prospective international multicentre study". Clinical Otolaryngology. 44 (3): 254–262. doi:10.1111/coa.13275. hdl:11343/285278. PMID 30588758. S2CID 58610511.
Ralli, Massimo; Quaranta, Nicola; Canale, Andrea; Röösli, Christof; Milella, Claudia; De Robertis, Valentina; De Soccio, Giulia; Greco, Antonio; Ralli, Giovanni; Albera, Roberto; De Vincentiis, Marco; Huber, Alexander M.; Bächinger, David (2019). "Cross-cultural Adaption and Validation of the Zurich Chronic Middle Ear Inventory Translated into Italian (ZCMEI-21-It)—a Prospective Multicenter Study" (PDF). Otology & Neurotology. 40 (3): 351–358. doi:10.1097/MAO.0000000000002131. PMID 30741898. S2CID 73436408.
Bächinger, David; Takagi, Daiki; Yamada, Hiroyuki; Teraoka, Masato; Okada, Masahiro; Hyodo, Jun; Röösli, Christof; Huber, Alexander M.; Hato, Naohito (2019). "Japanese translation, cross-cultural adaption and multicentre validation of the Zurich chronic middle ear inventory (ZCMEI-21-Jap)". Auris Nasus Larynx. 46 (1): 18–23. doi:10.1016/j.anl.2018.05.008. PMID 29871811. S2CID 46949869.
Amir M, Lewin-Epstein N, Becker G, Buskila D (October 2002). "Psychometric properties of the SF-12 (Hebrew version) in a primary care population in Israel". Medical Care. 40 (10): 918–28. doi:10.1097/00005650-200210000-00009. PMID 12395025. S2CID 25950087.
Vickrey BG (1993). "A procedure for developing a quality-of-life measure for epilepsy surgery patients". Epilepsia. 34 (Suppl. 4): S22-7. doi:10.1111/j.1528-1157.1993.tb05912.x. PMID 8348900. S2CID 33216251.
Selai CE, Elstner K, Trimble MR (January 2000). "Quality of life pre and post epilepsy surgery". Epilepsy Research. 38 (1): 67–74. doi:10.1016/s0920-1211(99)00075-3. PMID 10604607. S2CID 12205701.
da Conceição PO, Nascimento PP, Mazetto L, Alonso NB, Yacubian EM, de Araujo Filho GM (May 2013). "Are psychiatric disorders exclusion criteria for video-EEG monitoring and epilepsy surgery in patients with mesial temporal sclerosis?". Epilepsy & Behavior. 27 (2): 310–4. doi:10.1016/j.yebeh.2013.02.014. PMID 23523814. S2CID 566487.
Monteiro E, Osório F, Veriano A, Molina RS, Funayama SS, Terra VC, et al. (July 2012). "Validation of the Subjective Handicap of Epilepsy (SHE) in Brazilian patients with epilepsy". Epilepsy & Behavior. 24 (3): 345–51. doi:10.1016/j.yebeh.2012.04.129. PMID 22658433. S2CID 27975316.
Naik RK, Gries KS, Rentz AM, Kowalski JW, Revicki DA (December 2013). "Psychometric evaluation of the National Eye Institute Visual Function Questionnaire and Visual Function Questionnaire Utility Index in patients with non-infectious intermediate and posterior uveitis". Quality of Life Research. 22 (10): 2801–8. doi:10.1007/s11136-013-0412-y. PMID 23645458. S2CID 50961.
Meads DM, Doward LC, McKenna SP, Fisk J, Twiss J, Eckert B (October 2009). "The development and validation of the Unidimensional Fatigue Impact Scale (U-FIS)". Multiple Sclerosis. 15 (10): 1228–38. doi:10.1177/1352458509106714. PMID 19556314. S2CID 23273125.
Maxwell A, Özmen M, Iezzi A, Richardson J (December 2016). "Deriving population norms for the AQoL-6D and AQoL-8D multi-attribute utility instruments from web-based data". Quality of Life Research. 25 (12): 3209–3219. doi:10.1007/s11136-016-1337-z. PMID 27344318. S2CID 2153470.
Kaplan RM, Patterson TL, Kerner DN, Atkinson JH, Heaton RK, Grant I (August 1997). "The Quality of Well-Being scale in asymptomatic HIV-infected patients. HNRC Group. HIV Neural Behavioral Research Center". Quality of Life Research. 6 (6): 507–14. doi:10.1023/A:1018456031659. PMID 9330551. S2CID 1253643.
Hughes TE, Kaplan RM, Coons SJ, Draugalis JR, Johnson JA, Patterson TL (1997). "Construct validities of the Quality of Well-Being Scale and the MOS-HIV-34 Health Survey for HIV-infected patients". Medical Decision Making. 17 (4): 439–46. CiteSeerX 10.1.1.1004.6037. doi:10.1177/0272989X9701700409. PMID 9343802. S2CID 22869619.
Bouwmans C, van der Kolk A, Oppe M, Schawo S, Stolk E, van Agthoven M, et al. (December 2014). "Validity and responsiveness of the EQ-5D and the KIDSCREEN-10 in children with ADHD". The European Journal of Health Economics. 15 (9): 967–77. doi:10.1007/s10198-013-0540-x. PMID 24233919. S2CID 20429564.
Behan LA, Rogers B, Hannon MJ, O'Kelly P, Tormey W, Smith D, et al. (October 2011). "Optimizing glucocorticoid replacement therapy in severely adrenocorticotropin-deficient hypopituitary male patients". Clinical Endocrinology. 75 (4): 505–13. doi:10.1111/j.1365-2265.2011.04074.x. PMID 21521342. S2CID 205286522.
Aydemir G, Tezer MS, Borman P, Bodur H, Unal A (June 2006). "Treatment of tinnitus with transcutaneous electrical nerve stimulation improves patients' quality of life". The Journal of Laryngology and Otology. 120 (6): 442–5. doi:10.1017/S0022215106000910. PMID 16556347. S2CID 43430574.
Ware JE, Sherbourne CD (June 1992). "The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection". Medical Care. 30 (6): 473–83. doi:10.1097/00005650-199206000-00002. PMID 1593914. S2CID 44458175.
Hulsebos RG, Beltman FW, dos Reis Miranda D, Spangenberg JF (1991). "Measuring quality of life with the sickness impact profile: a pilot study". Intensive Care Medicine. 17 (5): 285–8. doi:10.1007/BF01713939. PMID 1939874. S2CID 6394744.
Furlong WJ, Feeny DH, Torrance GW, Barr RD (July 2001). "The Health Utilities Index (HUI) system for assessing health-related quality of life in clinical studies". Annals of Medicine. 33 (5): 375–84. doi:10.3109/07853890109002092. PMID 11491197. S2CID 37589566.
Davis EM, Lynd LD, Grubisic M, Kopec JA, Sayre EC, Cibere J, et al. (December 2013). "Responsiveness of health state utility values in knee osteoarthritis". The Journal of Rheumatology. 40 (12): 2075–82. doi:10.3899/jrheum.130176. PMID 24187098. S2CID 35129983.
Ebrahim S, Parshuram C (March 2015). "Comparison of utility scores from the Visual Analog Scale and Health Utilities Index 3 in children following pediatric intensive care unit admission". Journal of Child Health Care. 19 (1): 53–62. doi:10.1177/1367493513496909. PMID 23939724. S2CID 23422052.
Doward LC, McKenna SP, Kohlmann T, Niero M, Patrick D, Spencer B, Thorsen H (February 1998). "The international development of the RGHQoL: a quality of life measure for recurrent genital herpes". Quality of Life Research. 7 (2): 143–53. doi:10.1023/A:1008857426633. PMID 9523496. S2CID 19058639.
Spencer B, Leplège A, Ecosse E (June 1999). "Recurrent genital herpes and quality of life in France". Quality of Life Research. 8 (4): 365–71. doi:10.1023/A:1008904227182. PMID 10472169. S2CID 24573908.
Patel R, Boselli F, Cairo I, Barnett G, Price M, Wulf HC (October 2001). "Patients' perspectives on the burden of recurrent genital herpes". International Journal of STD & AIDS. 12 (10): 640–5. doi:10.1258/0956462011923859. PMID 11564330. S2CID 32358251.
Wirén L, Whalley D, McKenna S, Wilhelmsen L (February 2000). "Application of a disease-specific, quality-of-life measure (QoL-AGHDA) in growth hormone-deficient adults and a random population sample in Sweden: validation of the measure by rasch analysis". Clinical Endocrinology. 52 (2): 143–52. doi:10.1046/j.1365-2265.2000.00899.x. PMID 10671940. S2CID 11256536.
Badia X, Lucas A, Sanmartí A, Roset M, Ulied A (December 1998). "One-year follow-up of quality of life in adults with untreated growth hormone deficiency". Clinical Endocrinology. 49 (6): 765–71. doi:10.1046/j.1365-2265.1998.00634.x. PMID 10209564. S2CID 31044474.
Gutiérrez LP, Kołtowska-Häggström M, Jönsson PJ, Mattsson AF, Svensson D, Westberg B, Luger A (January 2008). "Registries as a tool in evidence-based medicine: example of KIMS (Pfizer International Metabolic Database)". Pharmacoepidemiology and Drug Safety. 17 (1): 90–102. doi:10.1002/pds.1510. PMID 17957812. S2CID 31206757.
Hays RD, Kallich JD, Mapes DL, Coons SJ, Carter WB (October 1994). "Development of the kidney disease quality of life (KDQOL) instrument". Quality of Life Research. 3 (5): 329–38. doi:10.1007/BF00451725. PMID 7841967. S2CID 41098376.
Fan WF, Zhang Q, Luo LH, Niu JY, Gu Y (2013). "Study on the clinical significance and related factors of thirst and xerostomia in maintenance hemodialysis patients". Kidney & Blood Pressure Research. 37 (4–5): 464–74. doi:10.1159/000355717. PMID 24247643. S2CID 207708239.
Fidan F, Alkan BM, Tosun A, Altunoğlu A, Ardıçoğlu Ö (February 2016). "Quality of life and correlation with musculoskeletal problems, hand disability and depression in patients with hemodialysis". International Journal of Rheumatic Diseases. 19 (2): 159–66. doi:10.1111/1756-185X.12171. PMID 24176031. S2CID 27610428.
Patrick DL, Hurst BC, Hughes J (2000). "Further development and testing of the migraine-specific quality of life (MSQOL) measure". Headache. 40 (7): 550–60. doi:10.1046/j.1526-4610.2000.00086.x. PMID 10940093. S2CID 23808987.
Garcia-Monco JC, Foncea N, Bilbao A, Ruiz de Velasco I, Gomez-Beldarrain M (August 2007). "Impact of preventive therapy with nadolol and topiramate on the quality of life of migraine patients". Cephalalgia. 27 (8): 920–8. doi:10.1111/j.1468-2982.2007.01367.x. PMID 17645757. S2CID 9406164.
Mérelle SY, Sorbi MJ, van Doornen LJ, Passchier J (February 2008). "Migraine patients as trainers of their fellow patients in non-pharmacological preventive attack management: short-term effects of a randomized controlled trial". Cephalalgia. 28 (2): 127–38. doi:10.1111/j.1468-2982.2007.01472.x. PMID 18197883. S2CID 44246726.
Doward LC, McKenna SP, Meads DM, Twiss J, Eckert BJ (September 2009). "The development of patient-reported outcome indices for multiple sclerosis (PRIMUS)". Multiple Sclerosis. 15 (9): 1092–102. doi:10.1177/1352458509106513. PMID 19556315. S2CID 7459469.
"Poster I". Multiple Sclerosis Journal. 18 (4 Suppl): 55–277. 2012. doi:10.1177/1352458512459019. S2CID 208625075.
Mäurer M, Ortler S, Baier M, Meergans M, Scherer P, Hofmann W, Tracik F (April 2013). "Randomised multicentre trial on safety and efficacy of rivastigmine in cognitively impaired multiple sclerosis patients". Multiple Sclerosis. 19 (5): 631–8. doi:10.1177/1352458512463481. PMID 23069874. S2CID 6838286.
Abbas M, Schwartz ME, Smith FJ, McLean WH, Hull PR (2014). "PCQoL: A Quality of Life Assessment Measure for Pachyonychia Congenita". Journal of Cutaneous Medicine and Surgery. 19 (1): 57–65. doi:10.2310/7750.2014.14017. PMID 25775665. S2CID 221801367.
de Jong Z, van der Heijde D, McKenna SP, Whalley D (August 1997). "The reliability and construct validity of the RAQoL: a rheumatoid arthritis-specific quality of life instrument". British Journal of Rheumatology. 36 (8): 878–83. doi:10.1093/rheumatology/36.8.878. PMID 9291857. S2CID 20190839.
McKenna SP, Doughty N, Meads DM, Doward LC, Pepke-Zaba J (February 2006). "The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR): a measure of health-related quality of life and quality of life for patients with pulmonary hypertension". Quality of Life Research. 15 (1): 103–15. doi:10.1007/s11136-005-3513-4. PMID 16411035. S2CID 23830883.
McKenna SP, Lebwohl M, Kahler KN (June 2005). "Development of the US PSORIQoL: a psoriasis-specific measure of quality of life". International Journal of Dermatology. 44 (6): 462–9. doi:10.1111/j.1365-4632.2005.01941.x. PMID 15941432. S2CID 22163460.
McKenna SP, Cook SA, Whalley D, Doward LC, Richards HL, Griffiths CE, Van Assche D (August 2003). "Development of the PSORIQoL, a psoriasis-specific measure of quality of life designed for use in clinical practice and trials". The British Journal of Dermatology. 149 (2): 323–31. doi:10.1046/j.1365-2133.2003.05492.x. PMID 12932239. S2CID 26091210.
Brodszky V, Péntek M, Bálint PV, Géher P, Hajdu O, Hodinka L, et al. (August 2010). "Comparison of the Psoriatic Arthritis Quality of Life (PsAQoL) questionnaire, the functional status (HAQ) and utility (EQ-5D) measures in psoriatic arthritis: results from a cross-sectional survey". Scandinavian Journal of Rheumatology. 39 (4): 303–9. doi:10.3109/03009740903468982. PMID 20166848. S2CID 26425942.
Doward LC, McKenna SP, Whalley D, Tennant A, Griffiths B, Emery P, Veale DJ (February 2009). "The development of the L-QoL: a quality-of-life instrument specific to systemic lupus erythematosus". Annals of the Rheumatic Diseases. 68 (2): 196–200. doi:10.1136/ard.2007.086009. PMID 18385276. S2CID 23886698.

uzh.ch

zora.uzh.ch

Ralli, Massimo; Quaranta, Nicola; Canale, Andrea; Röösli, Christof; Milella, Claudia; De Robertis, Valentina; De Soccio, Giulia; Greco, Antonio; Ralli, Giovanni; Albera, Roberto; De Vincentiis, Marco; Huber, Alexander M.; Bächinger, David (2019). "Cross-cultural Adaption and Validation of the Zurich Chronic Middle Ear Inventory Translated into Italian (ZCMEI-21-It)—a Prospective Multicenter Study" (PDF). Otology & Neurotology. 40 (3): 351–358. doi:10.1097/MAO.0000000000002131. PMID 30741898. S2CID 73436408.

web.archive.org

"Euroqol EQ-5D (EQ-5D)". PROQOLID.org. Mapi Research Trust. Archived from the original on 31 January 2015. Retrieved 20 November 2013.
"Psoriasis: management of psoriasis" (PDF). NICE.org.uk. National Institute for Health and Care Excellence. Archived from the original (PDF) on 2013-11-13. Retrieved 13 November 2013.

worldcat.org

Santino, Thayla A.; Chaves, Gabriela Ss; Freitas, Diana A.; Fregonezi, Guilherme Af; Mendonça, Karla Mpp (25 March 2020). "Breathing exercises for adults with asthma". The Cochrane Database of Systematic Reviews. 2020 (3): CD001277. doi:10.1002/14651858.CD001277.pub4. ISSN 1469-493X. PMC 7096190. PMID 32212422.